loraine,carla.sara,sally ,and nic ,reflux thread
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- loraine,carla.sara,sally ,and nic ,reflux thread
11/9/08 12:08
11/9/08 11:30
Sorry to hear you're going through so much ladies, just wanted to offer some hugs and support. I know it's so easy to think that everyone else has flawless babies and once in a while a baby does come along that's textbook and never cries, sleeps through, etc. But a lot of the time people try and tell you the best things, but they will hide the fact that not everything's perfect, and you might find we have great toddlers but they have the terrible twos and threes from hell. Loraine can probably confirm this as she's been through this 3 times before!
I get woken at 6am virtually on the dot every morning, but I'm pretty sure it's not for food, she plays for a bit, then if I give her the dummy she goes back to sleep (well I think she does, it goes quiet). I can't help feeling I should be getting up and feeding her then, though she's gaining a little weight so I'm always told "not to worry", I don't bother waiting to see the HVs any more, I'm just figuring it out myself.
11/9/08 11:13
OMG, hope you get through to them and they can see you asap.
I don't know much about fluid on the brain or what they do about it. Was that always a possibility then?
11/9/08 10:57
Ok, i'm back to moan.
I have just cried my eyes out, on the way back from HV. Got Brock weighed. He's put on 2 ounces in 2 and a half weeks and he's taking 40 oz a day with two meals. His head measurements are off the chart (biggest ever) the HV thinks the fluid is on the increase, could be why he's so sicky, there's me thinking it was the reflux (still might be though) I'm trying to get an appointment with his paediatrician for another cranial scan but do you think I can get them to answer the phone?
I'm going out of my mind with worry. This is my worst nightmare. I really hope the fluid isn't increasing. It would explain why his moods have been getting worse though.
Sorry for the rant, had to get it out somewhere. xx
11/9/08 08:45
Oh Chick! Sending you huge hugs.
I totally understand the excessive crying thing and I only have Brock, god knows what i'd do if I had other lo's as well, I think I would be bald.
Friday was a killer for me and Tuesday just gone, the crying started at 6 in the morning and was still going at nearly 9pm. It drives you round the bend.I get absolutely no rest in the day as Brock doesn't like to take naps. I have to impose them on him, he then screams blue murder, and after about an hour he will drop off for 20 mins. Then he's awake screaming again.
He's just been through a stage of screaming in the night, and being hard to settle back, he gets up at 6am nearly every morning and didn't go to bed until 9pm last night.
I know it's hard when everyone else seems to have a baby that never cries and is always happy and smiley, I question what i'm doing wrong sometimes. As nothing I do pleases him.
I know i've probably been absolutely no help, but just wanted you to know you're not alone and sometimes that's comforting to know. xx
11/9/08 08:17
Sorry your having a hard time. I went through a patch the other week where Nathan decided he was going to start waking in the night again and Sam was being woken up and hence being a nightmare the next day. It's so hard when you have more than one and you can't just have a sleep when the babay does the next day.
Nathan's sleeping has improved again now - although he decided he wanted to get up at 5.30 this morning!
I think he is feeling it already and is getting grumpy as I type.It's probably just a phase although I know that doesn't help at the moment. Why is it you can listen to someone elses baby and it doesn't stress you but your own is unbearable!
{{{{{{hugs}}}}}}
11/9/08 06:17
I dont know how much more i can take, i am sitting here with tears streaming down, Alfie has been waking either at about 3 or 5-6and dosnt go back to sleep. I know it doesnt seem that bad but he shares a room with his 4 year old brother and he wakes him up and it makes me so tired and irritable the next day so my other two cop it. I haave just moved Harry out his room into mine and let Alfie cry (scream is more appropriate) and i cant get away from it, it fills every room in the house. I know it seems cruel to leave him to cry, and i have checked his bum, too hot, too cold bonjela etc but i cant do this everyday.
I started to feel better in myself and now it seems it seems to be spiraling again. Sorry for the rant, i just felt that i needed to vent and dh works nights so he is not here to talk to.
x
10/9/08 22:28
I didn't say i had a bad day
It's just been busy! Madam's getting more mobile by the day so I need to start moving stuff tomorrow I think.Go Sam!
10/9/08 22:11
Am I the only one who's had a good day then? Nathan has hardly been sick all day - almost like a normal baby, it's been lovely. The only thing is I know I will be twice as depressed when he has a bad day again, hope it's not tomorrow. Not sure whether to get him weighed or not tomorrow, can't keep doing it every week can I?
Sam started school today. He's only doing a few hours a day to start but he really enjoyed himself and looked so grown up in his uniform. There are photos on facebook if you want to nose.
Had to go to work tonight on dh's birthday and just got back, not fair seeing as I bought him a wii and haven't had a go yet!
10/9/08 20:43
i resorted to calpol this morning.
I feel like all i ever do is moan. He is a great little man really. I just hate him crying all the time. I think alfie is teething toox
10/9/08 20:33
lennox has been horrendous today too nic so your not alone lol,his cheeks are bright red ,his had teething powders ,bongela ,bikkipegs to chew on and nothing has helped,i hate resorting to calpol has i feel like im doping him up x x x x
10/9/08 19:48
Not sure about more organised, I didn't get lunch til gone 3 today, though she appears to have gone to sleep with no problems. I'm more with it now, had he asked to go away when she was any younger, no way! Her face when she heard DP on my mobile loudspeaker was priceless though, I had to warn him we could get cut off as she was grabbing it and trying to press the buttons lol I just don't want her to do any dramatic milestones until he comes back!
10/9/08 19:18
hiya, ooh lucky you getting rid of dh for a while
I find i am more organized when hubby is not here.Well i have had a pretty crap day today, the crying seems endless. When will it stop
On a good note he has eaten 3 meals well today and got him weighed and he put on 10 oz in two weeks which is brill.
hope you are all ok
nic
x
10/9/08 09:47
I count the hours til hubby is home from work, I know that's bad but Brock's a right handful most days, especially at the moment. I would cope if he wasn't here for a few nights, although I don't think I would like it that much.
9/9/08 23:25
Would love to take the neocate and try it, but I think we're more or less settled on Staydown now, and besides I still have about 5 tins, plus a nutramigen I'm too guilty to get rid of the same as you! Might be able to get rid of it on ebay, I dunno?
We had another successful day with the chicken casserole that she wouldn't touch a few weeks ago. Tomorrow might try some cauliflower cheese or something, depends if I can be bothered to go to the shops, or whether I'll just use the Heinz packet of cheese sauce we bought!
Going to be a strange couple of days, DP is going away until Friday. This is the first time I've been totally alone with the baby, I mean when DP was at work I used to get so frustrated and couldn't wait until he came home. This time he ain't coming home for 2 nights, though at least she sleeps a bit better these days (if you discount screaming at 4am last night for some reason!). He's taking the car though, so I'm house bound again, well the local shops and that's about it, just like when she was first born. I'll probably go stir crazy!!!
9/9/08 21:26
Carolyn - make sure you lay it on REALLY thick with the doctor tomorrow so that they take you seriously and make sure they know that if there is a next time you need help straight away and don't want to be fobbed if by receptionists! Sorry rant over
9/9/08 20:59
hi hun you are right about them seeing us has over protective mam ,when lennox was first admitted they said was i a first time mam i sai dno his my fourth my oldest being 15 ,13 ,3 he then said oh well you know what your talking about ,you will know how his meant to feed etc .x x
9/9/08 20:50
Hiya,
Go Nathan!! That's good with the solids, and that he's been happier
Makes all the hard times melt away when they have their good days.Today has been horrible, i'm emotionally drained and feel like curling into a ball and just going to sleep for ages. I can't believe just how crap medical services can be sometimes. They just see you as a mum who's over reacting. But if it was their baby suffering, it would be different.
Hubby came home to me covered in sick with Brock screaming the house down, he knew by my face that today hadn't been great bless him. I snapped at him earlier, didn't mean to, feel guilty now. But men don't half come out with some daft comments.
9/9/08 20:49
hi hun ,if little one has had tests and defo has reflux ,you should be seeing a gastrointestinal specialist has well has a consultant peadatrician if little one has any other problems ,lennox sees the gastrointestinal specialist and the pead ,but he has defo got bad reflux has he was fitted with a ph probe and endescoped ,and it could be because he has a abdominal hernia,and also has von wille brands disease or haemophilia we waiting to be screened.but i do know different hospitals work in different ways ,my friend always seems to be seen by the understudy so shes always frustrated ,i know she lost her temper once and was seen by the head man x x x
9/9/08 20:41
How everyone's day been?
Carolyn did you have any joy with the Gaviscon?
Nathan's day hasn't been too bad, he got the hiccups after his afternoon bottle and dinner so hasn't been sick since about 3.30
He's been in a better mood today too and managed to eat some spag bol with Heinz baby spagetti in it which made it quite lumpy but he managed it fine.Anyone want some Neocate? I tried Nathan with a bottle yesterday morning and it all came back up so went straight back to nurture and it was significantly better. Only thing is I've got 12 tins of Neocate left and feel really guilty for having them prescribed now. Who knows what will happen next week though - he'll probably be better on the Neocate again such is the unpredictability of reflux!
Well, I finally got through and the secretary and she was lovely, he's got an appointment next Thursday at 12:20 that's their earliest available appointment, I thought I would have to wait about a month.
This has always been a possibility. We found out about the fluid when I was 20 weeks pregnant, I even had a fetal MRI done at Frenchay hospital when I was just 21 weeks to check that his brain structure was ok. Luckily he has no tumors or blockages. He just doesn't absorb the cerebral spinal fluid like most people. Causing a build up. If it builds too much it can cause brain damage, which is why they measure his head every 2-4 weeks. Although he hadn't had it measured for 6 weeks until today.
If the fluid is increasing they will insert a shunt into his brain and down into his abdomen to allow the excess fluid to be absorbed naturally by the body. Most children will need this for life, but some don't always. The shunt will get replaced every so many years, or if it wears.
I just hope it doesn't come to that.