my newborn has H I E
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- my newborn has H I E
5/6/08 20:38
4/6/08 21:04
Hi Angie, sorry to hear Ellie took a bad turn , hope she's ok now.
That's great, have you rang everyone you know and took a million pics, i am over the moon for you.
Ha ha, little tinker she's just keeping you on your toes!!
Hope everyone is doing well, Millie has started to roll over just on her right side but at least she's doing it.
Hugs.
xxx
4/6/08 20:15
hi
shes finaly done it .what? shes finaly started smiling,and its a beautiful smile.
just thought id let you all know cause ive waited so long.
hope all your little ones are well xx
25/5/08 08:45
gosh Angie,
I am so sorry to hear about your little one - thank goodness she's ok again. Babies hey, who'd have 'em? - well actually me...
24/5/08 19:57
Hiya
Angie - I'm sorry to hear about your lo but glad to hear she's better now. Anya also had 2 nights this week with temp of 39 degrees so I was really stressed. It's such a worry when they are ill isn't it. Turns out she's sprung 2 molars so I think it was teething or viral illness with her cold. Anyway she seems over the worst I hope and is doing ok - just learned how to open her hands up to hold a ball and has started waving!! I am a proud Mummy.
Hope your lo's are doing well.
xx
23/5/08 11:57
hi everyone
how are you all.
ellie had a bad turn last week ,she got a temp which caused her to fit(hasnt fitted since birth) the medi they gave her then caused her to stop breathing but after being resusitated she then slept for 48 hrs,bless her.she ok now and back home and back to norm whatever that is.
looked at the makaton site than was mentioned it looks good,spoke to the nursury teacher at childrens centre about it and they are going to be learning it there which is good news for me,they are going to find out if i can join them which would be even better.
hope your all getting on ok speak to you soon
angie xx
12/5/08 20:52
Hiya,
ha ha they're funny our lil ones just cause us endless amount of worry and the same amount in joy!!
It's good to know that Anya was doing that to with the head shaking also and Millie may grow out of it, she say Hiya now too.
Millies doing really well thankyou and we have just had a chap out today to fit fixing onto her matress to stop her stiffening, it comes in 2 weeks.
You should ask social worker to help with the dla form, mine is really good.
Big hugs.
xx
12/5/08 20:32
ps eleanor is a little head shaker too - she's got a horrible little bald spot still where she keeps rubbing her hair off
12/5/08 20:32
ooh - i really fancy the Makaton signing - i like the idea of bringing action, words and pictures together. I just need to see if there is anywhere nearby that does it when i'm not working
Has anyone else been offered portage? The epilepsy nurse has said she's referred us - again it's having time off work when i can do it ! The other thing I need to try and do is tackle the DLA form
can't say i'm looking forward to that one. 11/5/08 22:00
Hiya
lol - Anya went through the head shaking stage too!! I was really worried she had a spasm but clearly not as she hardly ever does it now!! I have been doing some baby signing with her and she got 'duck' but her hand co-ordination isn't really up to anything else although she does try - bless her! She's really trying to copy us with words at the moment which I think is a good sign although she doesn't usually get it right. Where there is a will there's a way though I like to think!
How is Millie doing?
xx
10/5/08 22:23
Hi abunge,
just reading your post have you tried makaton signing, it really helps doing the same with Millie and she's starting to grasp!! However her fav thing at the mo is to shake her head as no, lil terror
If you type in Makaton into google it is the first one and brings up homepage
Hope Anya gets better soon.
xxxx
10/5/08 22:00
Hiya
We had our Speech Therapy appointment yesterday and wasn't overly reassuring. Lo is behind with her speech/ babble and they won't be able to tell anything until she starts to make sentences anyway - not very useful session really! Never mind, she's started doing a few new things and her muscle tone looks a bit more relaxed so feeling more cheerful in any case!
Hope you all doing well xx
10/5/08 21:37
hi
finally got a speech/language appoint 4 next month 2 c how her swallowing is or isnt going,spent 2day in the assesmnt bay at hosp,she pulled her tube out this morn(after it got blocked last nite,got home from hosp at midnite) while at hosp getting tube fitted told them she'd woken with a temp after a few checks it turned out she has a urine infection,came home with medicen and an appoint 4 a kidney scan ,still better safe than sorry.
hows all your little ones,enjoying the sunshine while it lasts!
xx love to you all xx
7/5/08 20:23
Hiya
Anya is now 11 months (!) and says dada, nana and sometimes mumum but a lot of sounds like adad and udud so not long rambling sentences of babble which some babies are doing. She does try to copy sounds but not generally very successfully so will see what ST says.
Hope Eleanor is doing well and coping with this hot weather!
xx
6/5/08 11:37
thank you abunge - your little darling looks gorgeous too!
Eleanor generally isn't photogenic - that photo's about the only smiling one we've got.
Is your little girl making any sounds? she's about 10 months now isn't she? Eleanor keeps making noises but i'm not convinced they're starting to form sounds as well as she should be. Just wondered what they'd said about ST?
5/5/08 20:55
Hiya
I just wanted to say how gorgeous your lo is Nathard! She's a little beauty!
Hope you are all doing well.
I pushed for speech appointment too and we're seeing ST on Friday.
x
5/5/08 20:33
yeah-i have been really impressed by how helpful people have been when we have nagged. I found the best best was to ring the secretaries that you've been referred to and just say you were wondering what kind of wait it's gonna be... they then go oh look got your referral , oh look got a cancellation... you get the idea - and what's the worse that happens - they tell you to get lost. I hate waiting so much
5/5/08 17:50
hello all
its great eleanors doing so well,will have to ask about those seats for when ellies a bit older they sound like a good idea.ellie seems to doing ok but she does fret a lot in the car seat and get very sweaty,her clothes are always wet when we get her out and then needs a compleat change of clothes,poor thing.nurse says its often the case with her sort of condition
still waiting for her eye and speach appoints,i get frustrated waiting and not knowing,supose i'l have to start nagging again.hows everyone else and there little ones doing
thinking of you all xx
4/5/08 21:10
Hi everyone,
just htought i'd bump the thread up a bit.
Eleanor is doing great - still seizure free and has finally got the 'sparkle' back in her eyes.
She's got a new 'corner seat' from the OTs which she loves as she can now sit up and play.
in answer to the question some time ago which i didn't notice! eleanor first went to see the opthalmologist when she was bout six months - it may have been a little earlier than that but it all seems such a whirlwind.
I hope everyone is doing ok, and look forward to hearing from you all XXX
29/4/08 20:13
Hi everyone,
Sorry not been on for a while don't get much time and I've started back at work this week. Hate leaving my little man.
Happy to hear all your little ones seem to be progressing in the right direction, and glad to hear millie didn't have chicken pox, they thought my two year old niece had chicken pox too, but she was mis-diagnosed.
Liam smiled at about 2 1/2 - 3 months. I think he's doing quite well just doesn't seem to want to do anything except lie on his back. He six months now, I don't have my next appointment with the consultant until september, but the I need to arrange to see the gp about his eczema so I'll mention it to her and see what she thinks.
Take care.
Nikki + Liam.
Hiya Angie
Congratulations - that's brilliant! I'm so pleased for you - there's nothing like a smile to make it all worthwhile! OOh that rhymes!
Hope all your lo's are doing well
xx