hypoplastic left arm
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- hypoplastic left arm
16/9/08 08:52
15/9/08 14:17
hope marting had a good birthday awwwww to 26 again i wish lol, next birthday on my list is mine
december 23rd so dont for get lolnot much going on at the mo apart from issy is getting a little bit demanding as in wanting things now and being carried and picked up, she is wanting to do everything herself which is not a bad thing but gets frustrated when she can do it,
im getting rather p***ed off trying to find out our catchment area, the council say we are wisbech the school says were are in elm, so not sure where to put her name down at.
gonna phone council again so take care all xx
13/9/08 10:32
aww toc thats fantastic news so glad at last your getting good postive news. heres to many long happy years for teddie and you all xxx and good luck at your scan xxx
just a quick one as harry wants a feed soon, hiope everyone has a good weekend, martins birthday tomorrow (26) dont think we are doing much has have his brother staying with us
xx
13/9/08 01:05
oh toc that is fantastic news about teddie, im so pleased he is doing so well, and im also please baby to be is doing well, take care of yourself.
Issy is much better today still getting bucket loads of cuddles, she has a bruised face and a fat lip, not keen on eating much obviously it hurts still bless her, but she dose keep asking for cakes so guess what we doing tomorrow lol
i put my heating on aswell this evening so it wasnt so cold for bathtime, and turn it off as soon as she went to bed as i was baking hot, im gled its the weekend, getting a bit fed up at work and next week i gotta do 4 mornings
making up the time i took off yesterday.take care all xxx
12/9/08 19:32
hiya hope you and little ones are all good?
hope issy is ok after her fall?
teddie had his echo and sats etc done at evelina yesterday and cardiologist said it is all FANTASTIC YAY never heard him say that before so was shoked and i cried lol fingers crossed this will last him a long long time before he needs a transplant fingers crossed im so so happy it was good news
lil bubba is growing well it is already over 1lbs im 23 weeks i have got cardiac scan on this bubba next tue so will let you no how it goes hugs to all and BIG hugs to all the little ones xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx
12/9/08 19:05
hi hope issy is ok now after her fall, poor love xxxx
we tried a new play group today and james really enjoyed it as its mre for bigger tots so had loads of big toys to play with.
been raining all day here and its really cold so martins just put the heating on so the house is warm for bedtime.
cant believe harry is 3 months today its gone so quick and james was 18months on wednesday!!! where have my babies gone!!!! harry is such a lump of a boy now thats he doesnt look like a baby anymore.and you can only hold him for a few mins before your arm feels like its going to drop off.
both of them didt wake up till 7:30 this morning so a lovely little lay in for mummy and daddy.
well off for a shower now the house is a little warmer, hope everyone is well xxx
11/9/08 13:39
steps is a good web site im a member of reach the charity for children with upper limb and hand disorders, they have some usefull things on there to buy like non slip place mats non tie shoe laces one handed recorders for when issy is older.
only stayed at work 2 hours as steve phone and said issy had fallen down the kitchen steps with her cup in her mouth and he could not stop it bleeding, she has ripped thatet little bit of skin between her top lip and gum, poor little thing.
so no kisses today but bucket loads of cuddles.
take care all xxxx
11/9/08 11:00
hi all hope everyone is ok.
i recently registured on the steps wedsite and a lady has got back to me about her 1 year old who has PFFD and his difrrence is like harrys where amputation is likely. well her son daniel has a blog and its so encoraging. jodie you really must look at it. the can even give our boys a prosthesis before treatment stars so that they can learn to walk!!!! i feel over the moon after reading it
danielrigby.blogspot.com
right now ive told you iam off to put the kettle on
xx
10/9/08 22:18
OMG Lisa i havent even thought about christmas let alone do wrapping lmao, i have never been that organised at anything, one thing i have thought about though is im not putting presents under the tree till xmas eve night cos im sure i will be forever shouting at issy to leave them alone lol, oooh tell a lie i have got steve supernatual on dvd for christmas lol
i had the day off today and i was so lazy i didnt even get outta me pjs what a lazy moo i am. i played with issy all day, we ate naughty stuff and we wrecked the bathroom with bubbles and had a great time and now im off to me ickle bed cos gotta be up at 4am
take care all xxx
10/9/08 13:37
wow it has been busy on here x
guess what ive been doing????????????????????????
cant guess can you lol
well ive been wrapping christmas pressents!!!!!!!!!!!! thats right girls iam so organised that i have most of the boys things now and had some paper left from last year so while the boys were sleeping i wrapped them all.
well harry has his blood test at 3, martin coming with me so iam happy about that. just hope harry copes ok xx
9/9/08 22:53
hi all, nice to see so many here, hi toc hows that little teddie, doing well i hope and your little one to be is growing well.
lisa glad that james is still sleeping for you, issy didnt wake up till 10.. this morning wow a lay in lol, but it did thow the whole day out. so wont let that happen again in a hurry.
we havent been up to much the weather is awfull rain rain and rain, so have been stuck in quite a lot, making cakes painting and drawing, issy has 2 new fave words at the moment car and dumper truck along with action man and jeep think she is gonna be a bit of a tom boy. been trying the potty training thing and its not working yet but ther is plenty of time yet.
well im off to me bed, no work tomorrow yippeee
take care all xxx
9/9/08 20:05
hi girls hope ale ones areall good????
MARTHA maybe you could ask the doc for some emla cream on perscription if your lil one has to have lots of blood tests then you could put it on b4 you go to save lil one the pain?
big hug to you its horrid what they have to have done but they are so brave i think we come off worse then them emotionaly lol bless them
love all round xxxxxxxxxxxxxxxxx
9/9/08 19:46
HI ALL WHE WILL THIS RAIN END OMG GET UR BOATS OUT GIRLS LOL ITS CRAZY WEATHER, ABS HAS SELLY OAK TOMORROW TO CHECK HER PROSTHESIS TO MAKE SURE IT STILL FITS. THEN SHIPPING HER BACK TO SCHOOL HEHEHE,KYRA STARTS NURSERY IN TWO WEEKS FOR 5 MORNINGS A WEEK SHOULD BE GOOD BUT HECTIC AT LEAST I MAY LOOSE SOME WEIGHT WITH A BIT OF LUCK FINGERS CROSSED, HOW ARE YOU ALL DOING ,THANKS FOR THE BIG HUGS I LOVE IT ON HERE WE CAN ALL MOAN CRY WHATEVER WE FEEL LIKE UR ALL GREAT PEOPLE I SHOULD TRY AND MAKE MORE OF AN EFFORT AND COME ON HERE MORE BUT TIME GOES SO QUICKLY DURING THE DAY, TAKE CARE ALL BIg HUgs XXX9/9/08 09:25
hi all
been making most of the nice weather over the last few days which iam glad cos its raining today
harry had his 2nd injections yesterday and weighed 14lb10.5 oz!!! james has aslo cut 4 teeth in the last 2 days so he hasnt been his normal happy self. harry still sleeping through which is great.
just done james' and harrys foot and hand prints this morning which james loved getting paint all over. the bath water was red after i finished getting it off them both so had to refill it to wash them down again.
james at grandmas later while i take harry to baby group so that will be nice.
then tomorrow harry has his blood test
he screams for ages with his injections so really not looking forward to that.righ off to do my hair and put a happy face on
catch you all soon xxx
8/9/08 18:53
awww big hugs for pam and abs,i cant imagine what its like for poor abs, it must be difficult every day, we have it pretty easy with isabels arm we only have to go for refits which we are not at the moment as she wont wear one and she is doing perfectly well with out.
got issys feet measured and she has gone up from a 3.5 f to a 4f, not going to get more shoes gonna look for sum boots for the winter, she has sandals and shoes which are a 4, i cant get any trousers to fit her, if i get 12/18 they just fall down and if i get 9/12 they too short, so think its gonna be dresses and thick tights for the winter, her coat stil fits from last year but gotta get mil to take the sleeve up cos its too tight to turn up.
we made cakes yesterday and omg did she make a mess or what i had cake mix in m;y hair she was coverd in it and so was most of the kitchen, but she had fun lol which is the main thing,
hope ya all r ok
take care all xxx
7/9/08 19:06
not really sure how many ops abs will need yet i suppose they will say as shes growing,but if its easier may be better to take off the knee but we will see oh well more stress for us mummies ,how are you all xxxxx6/9/08 11:13
big huggs for james, im so pleased for you that he is sleeping all night, it makes such a huge difference
took isabel to docs twice this week she has had this nasty sore patch on her chin, first gave us some cream to put on it saying it was excma (cant spell it lol) but in morning it had gone all yellow, so took her back and its an infection the cream had made it worse, so now have antibiotic cream so hopefully it will clear up.
lisa sent you some pictures but mailer deamon sent them back ????? will try again later.
it is soooooo good to hear that teddie is making a good recovery toc have been thinking of you both xxxxx
right im off me and issy are making winnie the pooh cakes should be fun lol
take care all xxx
5/9/08 12:54
aww thanks everyone,
harry is still sleeping all night woohoo. he was up at 4 thursday morning but that was cos he poo'ed all up his back, but as soon as he was changed and cleaned he went back to sleep. me on the other is still waking up at 3am. lol
pam how many op's did abi need? we still dont know but will hopefully find out in november.
toc iam so pleased teddie is doing really well, have been thinking about you so much. so happy he is on the mend xxxxx hope all your scans go well cant wait to find out what your having
james is saying loads of words now, its like he has eaten a dictionary lol.
harry has his next injections on monday then a blood test on wednesday to see if he has any underlined sysdrome, so not a pleasent week for him next week.
hope your all ok xxx
4/9/08 20:58
hi ladies hope you and lil ones are all ok?
martha sorry to hear your news but im sure it will be for the best for your lil boy xxxxxxx
as for my lil boy he is now PINK wich is amazing he is like a different child he has a echo etc nxt week so fingers crossed all is good on the inside aswell
im having a scan 2moz so going to find out what im having yay
got a cardiac scan on this bubs next week so fingers crossed for that speak to you all soon love to lil ones xxxxx
4/9/08 20:44
sorry to hear about harry
(((( im not sure what to say really i remember when abs has to have her bone straightened in her knee to make it easier for her to walk in her prosthesis xxxxanh she had to have a hip spica for a while and i was like a mad woman because they didnt explain what was happening properly,but it was better for her in the end lots of love to you all im here for all of u even if im not on here as much as i was xxxxxxxxx
do we have to ring and put names down, i have no idea how the whole school thing works, think i better start looking into it, theres not many nice schools here so might need to put his name down now.
martins brother went home this morning yay!!!
poor harry is full of cold had to rise his mattress last night so he could breath. he also has a watery eye so been bathing that with boild water as doc doesnt think its bad eough for drops. he also has trush on his bottom so got cream for that. just hope he gets better soon i already miss his little smile and its only been a day.
james is also like issy and wants to do everything but gets really mad when he cant. he has a massive spot on his face, he had one like it about 8 months ago and it scared and when ever he is cold it goes blue. have a feeling this one will scare aswell
well hope everyone is well and joise ive got your birthday on my calender already, will send you a card with your christmas card. xx