hypoplastic left arm
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- hypoplastic left arm
29/8/08 09:48
27/8/08 16:24
im crap a sewing, im gonna have a go though but not on her coat, i have a sewing machine but never used it, so im going to practice on some old clothes, mil makes all issys cardigans she is a fantastic knitter so all the left sleeves are shorter too./, it just looks nicer.
cant believe how many words she is comming out with now you only have to say something a few times and she repeats it, she had us all laughing earlier, she was in the front room playing and came toddling out to the kitchen with one slipper on one trainer both on wrong feet,her cardigan warpped round her neck saying gadin (garden) lol.
harry is doing well with his bottles, issys only ever managed 5oz and that was at 6 months, now she drinks milk till it comes outta her ears.
catch you all later take care all xxx
27/8/08 09:52
know what you mean about rolling up sleaves. harrys trousers are a nightmare cos his leg is so short i roll his up as hate the look of it just hanging over his leg, but is so bulky. may have to look into alturning his trousers at some point. he has some lovely jeans in the next size up so might ask mil to have a look and see what she can do. as iam rubbish at stuff like that.
hope you get a nap later.
catch you all soon xx
27/8/08 05:08
omg jodie think nile has his days and nights confused and as lisa says you must be knackard you poor thing hope he settles soon for you, it makes a hell of a difference if you can get a good nights sleep.
mil going home to day wooohooo, she made issy two lovely dresses yesteday and took the left arm up on her new coat for me as i hate having to roll her sleeves up as it gets too bulky.
still cant laughing about james and his carjacking lol that is so funny.
right better get going and get ready for work
at least its only till 10 this morning and im usually still half asleep by the time i get home so hopefully get a little nap hehehehetake care all xxxxxx
26/8/08 20:58
joide you must be shattered (((hug))) really hope he starts to settle soon. do you think that maybe his hip/leg may be causing him some pain? always worth asking the doctor if you already havent.
putting harry up to 7oz bottles tomorrow as he has been draining all his bottles the last two days. he is such a lump now. really need to get him weighed as sure he is over a stone now.
james hasnt eaten hardly anything all day. his gums are all sore and sollown with his teeth coming so know it down to that. hope he eats tomorrow as hate him not eating. right off to put my feet up
catch you all soon xx
26/8/08 13:47
Hi everyone
Hope you are all doing ok!
Nile still wont sleep at nights been giving him formula or expressed breast milk last feed at night so i know he has had plenty to eat.Also put him in our bed for a couple of nights as he wont sleep in his moses basket but that has not helped either.He slept from 12-2.30 then was awake the rest of the night!Come down stairs at 5 as he would not settle & he went quiet straight away just sat staring at me for a hour.Gave up on things to try guess he just dont like night times!
Lisa let me know how you get on at your appointment when you go!
Just been trying to tidy my house today its such as mess just cant seem to get anything done lately.Need to get in some kind of routine everything just seems a struggle.
Take care everyone Jodie xx
26/8/08 09:41
that is so funny lisa, hopefully he going to be a mechanic lol they are so funny hope they keep it up and forget about the terrible twos, iwent shopping with mil, got issy some trainers and some new pjs she finally grow out of the 6/9 months ones.
mil is making her 2 more dresses whilst she is here (going home tomorrow). she hasnt been too bad this time apart from keep saying she wished she lived closer.
well better go can hear her moving about upstairs lol
take care all xxxxx
25/8/08 13:00
just waiting for martin to finish work, hopefully wont to too long. hate it when he works bank holidays. hopefully if it doesnt rain might go for a walk along sea front for some freash air.
went for a really long walk yesterday and james walked most of it, which he loved. he is such a good walker and always holds your hand. it was really funny as he kept going up to cars and trying the door handles and pointing to the locks. hope hes not picking a cearer in nicking cars!!! lol.
well off to find some food
catch you all soon xx
24/8/08 11:17
gotta have a good housey day to day as mil is comming on monday and staying over
she is alright realy just cant keep her opinions to herself.we are now haveing to watch what we say in front of issy as she is now picking up words very easily, mind you its not the same when you stump ya toe and have to shout awwww flippy floppy lol when you so want to say something else.
hope all goes well on the 3rd Lisa, we wrote a list of things we wanted to know before we went so we got all the answers and understood her contiontion as your mind always goes blank when you get there. there are several names for her conditon hypoplastic and amelia and somnething else but i cant remember.
well better go get me bum in gear, take care all xxxxx
23/8/08 11:16
yes they mentions leg lenghening for harry but has his leg is over 50% shorter the said removeal may be the better option. but we will see what they say on the 3rd. they just told us his condtion was called hypoplastic femur.
lol at issy arent they turning into funny little people now
james likes to sweep the floor and ride the hoover lol.well got some friends coming over at 2:30 so think i might just have a quick clean
hope you all have a nice bank holiday xx
23/8/08 10:09
awww poor baby nile, it seems such a lot for a baby to have to go through so many operations, my friends daughter had to have a hip replacement at the age of 5 as the ball was too big for the socket and it kept comming out but it had also damaged her socket, it just dosent seem fair.
Lisa have they mentioned bone lenthing for Harry, i know you said his hip is as it should be which is good, have they said its the same condition as niles.
the mood swings havent arrived as yet thank god but i have been so hot and sweatty for the last 2 days last night i was sweating that much i thought id wet the bed lmao
but other than that all is well.issy has been a little angel for a few days, she helped me unload the washing and it was so funny she did the same as me gave it a little shake before putting it in the basket, she is also trying to put clothes on the wrong ones of course, she came tottering in with a pait of my knickers on, her head through one leg hole and arm through the other i almost pmsl, she also tries desperatly to put her cardigan on, she is almost there bless her,
well better go and get on with some housey stuff, my kitchen looks like a disaster area
take care all xxxxx
22/8/08 18:41
aww poor niles. at least you kinda know what your going to be up agaist. its just so upsetting that our poor boys have to have any kind of operations. ones bad eough but to have to go through more it just heartbreaking. has he settled down abit now? xx
we are at the surgeans a week on wednesday, so hopefully we should know more about what harry has to have done.
joise how you feeling hun? hope the mood swings arnt to bad xx
i got my new buggy today and its tiny!!!! I LOVE IT. it looks just like a single buggy but for two xxxx
22/8/08 09:15
Hi everyone
Nile had his hospital appointment with bone specialist wednesday!He told us nile would proberly need at least 2 operations to make his leg longer & straighten the curve in the bone.Nile also has a problem with his left hip the bone goes into it at a weird angle so sometime over the next year he will have to have a operation to break & set the bone in the right place.The ball on the hip also looks abit bigger than it should & the shocket shallow we have to go back in 4 weeks to see how it looks then!We asked him if there was a name for the condition nile has & he told us PFFD which stand for proximaz focal femoraz deficiency!
Still waiting for appointment to see plastic surgeon to seperate niles niles fingers.
Bless him he has so many operations to have done!
Hope you are all ok take care Jodie xx
21/8/08 10:35
writing before 5am joise, your doing better then me. ive given up trying to post whist doing night feeds as my brain wont work and ebd up having to re-write most of it has most of it looks like its been writen by a 4 year old who cant spell simple works like..... to, hi, etc.
my new dubble buggy still has not arrived should have been here yesterday and really want to take it for a test drive. both boys are asleep, james wanted to go to bed at 9:30 and he even told me he wanted to (by actions) he was sucking his thumb, and had reached into his cot for his little piece of cloth he likes to hold then came and got my hand and lead me to his room and started to clim on his cot, it was so sweet he has never done that before and as soon has i put him in he went straight to the top conner and went to sleep. really gald he wanted a nap as going to play group at 11, so like him to have a nap i i can get him to sleep as we wont be home till after 2pm. will have to go wake them both up soon, only got their shoes and coats to put on so will wait till the last minute.
its our 4th wedding anni today, so going out for a family meal this evening.
hope your all ok, will look out for the mood swings joise lol.
21/8/08 04:52
btw i think i found you pam :}
21/8/08 04:50
awwwww im so tired couldnt sleep and im working today, have been looking for another job one that dont start so early, but then i like being home for 12.30 to spend the day with issy i so want to win the lottery lol
just to warn you my doc has decided that he no longer thinks i need the medication that im on, so i could be really grumpy next week so dont take any offence to anything i might say
id better go get dressed and make my way to work, its staying dark in the mornings now so gotta go find me torch as ther are no street lights here.
take cae all xxxxxx
20/8/08 21:11
all wahsing and ironing done
lol. i really dont do much house work, i might do it once a week so when i am in the mood i do get it all done that day/night cos i never know when i will feel like doing it again lol.i think issy and james are in conntact some how lol. i think i made him feel guilty at bath time as i told him that mummys and harrys teeth were are nice and clean and only clean mouths gets lots of kisses. he cleaned his teeth!!!!! not very well but still better then nothing like you say.
well off to go do harrys baby massage before last bottle then its bed time for us all.
night night xxx
20/8/08 15:54
Lisa are you sure that James and Issy are not txting each other lol, she too has gone off having her teeth cleaned its been a pin her down and scrub job recently. i have now got her another tootbrush and she dose it herself and i quickly have a go inbetween, they are not getting as clean as they were but its better than nothing., she is also making a grab at dirty nappies and trying to take it off now
have been trying to upload hol pics but they are all too big, gotta make them smaller so might get that done tonight and post 2morrow.
poor abs she is not having a good summer is she, havent the doctors suggested a way of preventing her leg from getting so sore, they must come across this problem sometimes, its so unfair for her, give her big hugs from us xxxxx
btw Lisa what ironing lol, i only iron all issys clothes, ours gets done as and when we need it, long gone have the days where i spend all day washing and cleaning and ironing all night. the rule in my house is if its not done be 5.30 then it gets left till the next day, after dinner its baths, pjs and wind down time, 7 is bed time then the rest of the evening is all mine to do with as i please. spent too many years spending all my time on housey stuff morning noon and night.
well take care all xxxxxxxx
20/8/08 09:10
poor abi, she really isnt having a good time is she, lets hope your get a pushchair soon.
well the sun is out today so my washing machine is on and will be on most of the day if the sun stays out, hopfully i can get most of it washed and driedthen spend tonight ironing it all.
anyone got any tips on getting james to brush his teeth? he used to brush them really well as he would watch me and copy, but now when ever we get the tooth brushes out he screams and you have to hold him down to brush his teeth, which is awful. ahve no idea why he hates it now after months of loving it.
hope your all ok, joise still waiting to see your holiday snaps
18/8/08 20:09
finding out about a pushchair so hopefully will get a disability one fingers crossedxx her poor leg wasnt good ouch took a few weeks to get back to normalxxbut makes her really tired and now will have to get used to wearing her leg which isnt good xxx tc all love pamxx
hiya ladys how r u all? and hows the little ones? all good i hope xxx