Special needs

Special needs
O.D.D - Oppositional Defiant Disorder

9/8/08 08:26
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jaycorkatbai

morning Hun ,

its sounds like Ben's really not takeing to the meds , i would definitely keep at them at the next appt , you should have seen some improvement by now , and there are other meds he can take ,

Cory was emotional on them , and eat quite a bit in the end he was so conscious about his weight , he did put on quite abit with it , its all come off again now tho . and with the dribbling down there i took him to the gp in the end and he helped me take him off it .

it does take a while to get the right dose , not that thats and consolation.

hows the puppy doing ???

ours is getting better but she still barks and growls at katie and still trys to nip her .

i spoke to the hospital about cory again yesterday , the secretary was very apologetic apparently the pead was supposed to ring me , she said she will try and get cory an appt so we will see .

were all ok thanks not enjoying the summer holidays much but its been worse so cant conplain . the boys have football next week and jay has kayacking on monday so that should break next week up a bit .

im off to a wedding today my friend is getting married im doing her hair for her at 12 , shes not getting married till 4.30 , the weather is horrible hope it brightens up for her later .

hope your all well keep your chin up vick xxx
8/8/08 17:53
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dilly1969

Hiya Hon. How did everything go? As well as can be expected I hope. Have you heard anything about Cory yet? We are still straggering our way through the holidays, Ben is impossible you just cant keep him happy!! He wants to paint, 5 minutes later he wants to play computer, 5 minutes later he wants to do something else and if he can't do whatever it is then he bursts into tears and we have a fit. Also if we are swimming or whatever 5 minutes after getting there he wants to know what were doing next. I am going to disspaear up my own bum (ewwwwwwww) trying to keep him occupied (with the other 2 in tow of course!!!) Luckily Bill is off on hols at the mo so I get some support fro the next few weeks. The meds are about as much use as t!ts on fish to be perfectly honest, it just makes him cry and eat more. I did question it last time but got told to carry on unless he started making involuntary movements then stop it and take him docs!!!!! I will ask again in September as I dont feel its beneficial in the least. It isn't stopping him being hyperactive which he assured me it would and I dont want to do anymore videoed interviews Ive decided!!!!! I feel like I really am the one under the spotlight and its really horrible as Im doing my best, know my son isn't "normal" and am fighting tooth and nail to get him help, and us of course. I dont know! Im nt sure what a calm normal household is anymore and Im not sure I could deal with it if I did!!! lmao!!!!

Onwards and upwards........... Hope all the others are ok hon and you are enjoyng the hollies. Speak soon xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx
7/8/08 18:26
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jaycorkatbai

hi dilly , how are things going ,

hows the medication doing it there still no improvement ???

its great to hear bens reading level is way higher than expected thats great i bet you were well pleased ,

as for the theraplay im not sure jay has never had anything like that. if bens not good at expressing his emotions then it may be good for him .

as for the psyc , i saw one with jay a few years before his diagnoses and i refused to see her again , they want to no everything and then make up there mind if there like that because of pregnancy some thing that happend ect , even if it doesnt benifit you it may benifit ben you never no , your comment made me chuckle about seeing your self on vidio lol sounds like some thing i would say .

hope your all ok ,

we got back from doncaster this afternoon , im exausted .

still no news from the hospital about cory , im gonna give them a call in the morning im getting fed up with it now , its been nearly 4 weeks since this letter was supposed to of been chased up and sent ,

anyhoo hope to talk to you soon take care vick xxx
5/8/08 13:09
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jaycorkatbai

hi just a quick one were going away soon in the next 30 mins , will catch up with you when i get back wich will be thurs ,

keep your chin up hun , hope your all well xxx
4/8/08 16:08
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dilly1969

Hiya hon

I do hope you hear about Cory soon. It's all this waiting that gets me down, I know we're not the only people they deal with but!!!!! Well as you know they started the meds on 0.25ml morning and night, then they upped it to 0.25ml morning, 0.5ml night then from next week it's going to 0.5ml morning and night. So far nothing has changed other than Ben being quicck to tears, very emotional, compulsive lying, saying things we have said that we haven't and an increased appetite!!!! Don't think it's working!!!! Last appointment on 18th July they did 1 to 1 with Ben and Jackie (the lady who does it) wants Boxall tests done by school as apparently his reading level and understanding for his age is way above anything she has seen in her job before and she wants a proper assessment as to how far ahead he is. Also she did work on "feelings" and other stuff and she said Ben is very complex and can't express his feelings, they are very black and white and he takes things very literally. She also said his imagination was no no where near what she thought it should be. He goes back again for "Theraplay" whatever that is on 5th September for an hour. In the meantime I have been for an individual session with his pyscologist which was videoed (god I looked fat!!!!!) and I had to go through all of Bens pregnancy etc etc. I have to go back alone for another session in September too. I didn't find it helpful in nay way really but hopefully he did!!!! So that is where we are at the moment. I think I am doing really well, we're 2 weeks in nearly and I've only cried once!!! I might just make it through to September with my sanity hanging by a thread!!!! lol Hope the rest of the clan are ok hon and sorry to hear about DH's loss. My thoughts are with you all xxxxxxxxxxxxxxxxxxxxxx
4/8/08 14:59
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jaycorkatbai

bump
3/8/08 09:40
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jaycorkatbai

hi hun , sorry i broke both laptops in the house ,i spilt tea on corys and mine i dropped ,

corys is fixed now mine still broke ,

also we went doncaster last weekend to visit dh family , were going back on tuesday as dh grandma passed away .

i have been on but didnt see the thread didnt no you replyed lol sorry .

so no not stayed at butlins lol, too bloody expencive there .

hope your all ok look forward to hearing from you with the news ect , you could always pm me if im slow at getting to the threads lol.

all ok here still waiting to hear from the hospital about cory , i did ring them apparently the pead has wrote me a letter still not recieved so will ring them monday morning again ,

hope to speak to you soon vick xxx
2/8/08 18:43
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dilly1969

Hiya Vick! Where are you???? I think you must have got a job as a red coat!!!! Lots to tell you, none really productive!!! lmao!!!! MEdication has been increased and then increased again but no real improvement except tiredness and hunger!!! Hope your lot are ok and you're enjoying the holidays. Speak soon I hope xxxxxxxxxxxxx
25/7/08 08:26
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dilly1969

Hello hon where have you dissapeared to?? Maybe you loved it so much at Butlins you've stayed!!!! Hope everyone is doing ok and you're surviving the summer hols. It's only day 2 here so it isn't too bad at the mo but BIll is on nights all next week so I think that will be the hardest as I have to try and keep them quiet or out the house (Cant be gone too long because of doglet). They wake him up he gets all crabby and by night 5 the whole house is in chaos!!!! lol once that is over BIll has 20 days leave so that will be a big help and we can get out and about for a few day trips. Right I must get this lump of a dog in the car and get him to the country park fro a walk before it gets too hot. Speak soon hon and hope you're all ok xxxxxxxxxxxxxxxxxxxxxxxxxxxx
17/7/08 17:16
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dilly1969

Hello hon. Did you have a good holiday? How are the clan? I am absolutely dreading the summer holidays to the point of just wanting to run but It's only 6 weeks eh? I've done it for the last 4 years and no doubt I'll carry on doing it. WE have another appointment tomorrow so I will discuss medication then. Ben is just crying constantly over really silly little things and I don't know what to do. He is getting himself really wound up over nothing and the meds are making it worse I'm sure. Oh well onwards and upwards.
6/7/08 09:05
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jaycorkatbai

hiya hun , were all ok thanks ,

how are you all ? .. ... i think mark my dh wants to try the skegness one nxt year his nanna lives in doncaster so we can visit after .

the meeting went ok , i felt a bit patronised at times , think we might have got some where in getting jay some support , iv got to try and get a meeting with the head teacher to try and get j some support at school as he has none at all , so hopefully things will move quickly .

i have another meeting 28th july just a review one , and the school nurse is going to contact the hospital about getting another appt for cory as still not heard anything after sending in his conners reports .

pupp shes still driving me nuts lol , i dont like this stage at all , she will be going to my mums during the day while were away my mum has a staffi male they met the other day went crazy for an hour but then calmed down so im hoping it will do her some good

right i best get on still got my packing to do i am so disorganised its not funny .

hope you have a good week , will come back on once im back and see how thinga are going with ben , hopefully j and cory will behave while were away wishfull thinking lol

take care vick xxx
3/7/08 21:43
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dilly1969

Hiya hon, hope you all have a lovely time at Butlins. We love the one at Skeggy (well the kids love it!!!) We are having the silly nippy stage but the book I read siad this should pass by 6 months. Hope this is the case, I don't like the puppy stage very much. Ben is really tired tonight I think the meds are kicking in again now but I'm still not happy about the dose. Hope Jay gets on ok, let me know how you go. Loads of love xxxx
3/7/08 16:11
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jaycorkatbai

hi hun , were all ok thanks

were off to bulins on monday i havnt even started packing yet .

i have a meeting tomorrow about jay my oldest so abit nervous about that im sure it will be fine fingers crossed .

at least your gp will be willing to do the script once the dose is stabalised , it will then save the trouble you had with the hospital .

puupys ok thanks still abit nippy buts normal i suppose and getting better

hows your pup doing ? hope the rest of the family are well . and your not to stressed

vick xxx
2/7/08 19:30
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dilly1969

Hiya hon, finally got meds and I went into school to give him his morning dose so he didn't miss this mornings and then he had another just before bed. My GP won't take over prescribing Respiridone until BEns condition is stablized and the dose is worked out, she said it's a spcialised drug and she isn't happy to take over the prescribing at the moment so his psycologist has to prescribe except he is useless at the best of times and in a different town. I'm sure it's some sort of test - see how far we can push the parents before they flip!!!! lol

We have another appointment on 18th July so I will discuss the dosage of meds then and see what their next plan of action is. Silly people!!!!!

How are you and your clan? I hope everyone is keeping well, how is pup??

speak soon xxxxxxxxxxxxxxxxxxxxxxxxxxxxx
2/7/08 14:33
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jaycorkatbai

hi hun , no wonder your so angry its not a drug that can be stopped straight away needs to be redused so cant believe they made you wait for it , its not on .

could your gp not perscribe it ??? only ask as the gp,s where i live do , if the pead has asked them to it may be worth asking about that way he wont be left again .

hope your feeling better today xxx
1/7/08 22:08
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dilly1969

Not happy!!! I told the doc that Ben was running low on meds last FRiday but I had to ring again on MOnday when we had run out completely. They won't post a script so I had to drive to Kettering to pick it up on Monday afternoon. I then proceeded to go to 4 chemists that didn't have it in stock and the soonest my local chemist could get it in was tomorrow!!! so Ben has missed Monday night, Tuesday am and pm and tomorrow morning!! They told me he shouldn't stop taking it and now he says he's cold and shaky (despite it being very warm!!) I think these are effects are him missing 4 doses and I'm so cross they left it so late to let me have another script. It's not as though I'm going to OD him is it?????? I can't believe so many chemists don't keep it in stock. Argghhhhhh!!!!!
28/6/08 21:31
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jaycorkatbai

ahh hun believe me i do moan and alot ,

just try and hang in there hun , once they get the dose right ben should start to settle down , and get a bit of normality back , not saying it will be peachy every day cause i would be lying lol,

but it will get easier .

keep your chin up hun it will get better , i hope its not your fault theres a summer holiday lol , or you can tell me where you live and i will drop mine off lol xxx
28/6/08 20:40
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dilly1969

Thanks hon. You never moan and all I do is moan!!! God he has driven me to the edge and then some today!!!! The meds are NOT working and I rung the docs on Thursday to say that. HE is away for a week so I got told to ring on MOnday and another doc will just write out a prescription for the same (0.25ml twice a day so 0.5 in total) even though it doesnt work I have been told he must continue it and on that dose for time being. I am DREADING the summer holidays, really really dreading it. It's all my fault the schools are shut you know!!! xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx
28/6/08 20:09
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jaycorkatbai

ahh bless you hun , hope your feeling a bit better now .

and tomorrows a better day for you xxx
28/6/08 19:25
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dilly1969

I am having a bad day!!!!!! ARghhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhh!! There that's better. xxxxxx I am not coping!!!!!!