thanks for your replays its just so frustring i an still wait date for mri scanb and to see if hes going in september for his assment or not  but at least he will get some help then

My dd is very similar in symptoms and i'm still fighting to get her diagnosed. She is my 2nd out of 4 children and is now 5. Dd was also late sitting, walking, crawling ect and many people commented on how good she was because she was happy to just sit and not want to do anything that you would of expected at the different development stages.

Dd also prefers to do things on her own and only seems more comfortable with her siblings and even then she sometimes just wants to be left alone to watch her fireman sam dvd which she watches all the time and will want it back on as soon as it's finished. She also doesn't cope well in large groups even with family i think christmas is difficult for her because everyone is there and they do tend to get anoyed when she doesn't show much interest in the toys that they get her.

Dd also has the language of a 2yr old and most people outside the family don't understand her. I think it's awful that some doctors just don't listen i've been fighting to get answers since she was 6mths and am waiting now to see the child phycologist as the speech therapist has said some thing is going on but don't know what and she does need extra help especially in school where she is finding it hard to cope with things.

I do hope you get the help you need.

jew x

To be classed as 'Autistic' a person needs to fill certain criteria from a recognised specified list. IF those criteria are not fulfilled BUT that person still has many of the symptoms listed (but not necessarily in the right 'order') then its either classed as 'ASD' autistic spectrum disorder, or PDD-NOS (Pervasive Developement Disorder Not Otherwise Specified).

a good web-site to read up to make it much clearer than i could do is:

http://www.autismspeaks.org/navigating/pdd_nos.php

http://www.autismweb.com/info.htm

http://www.autism-society.org/site/PageServer?pagename=about_whatis_PDD

Hi thanks very much for you advice i did see a dietitian about 20 months ago but i think that was more what foods to feed him to fatten him up so i will see if i can get another app i am hoping i will have his assessment done before i see pead again as i am really hoping he will be seen in September i did the brain score thing and it came out moderate pdd sorry not to sure what pdd-nos is i will let you know how i get on and have signed up to the forum thanks Nicky

sorry about the smiley - not sure how that got there. SOrry for the bluntness.

This is a good site:

http://www.childbrain.com/pddassess.html

hmm yes i really would look into autism (tho probably PDD-NOS,)  - definately hypermobility, probably dyspraxic and dyslexic too. sorry.

Please try and get a dietician because he also sounds like he should be on a CF/GF diet. Its easier tho to cut out milk first and then the gluten.

This sounds like an awful lot of stuff - and it is. It is easier to surf the web and find out lots (try www.nas.org.uk and http://specialkidslobby.proboards84.com/index.cgi  as there is sooo much. there are lots of forums that will help, but it is easier if you look into basics first. THen when you feel totally lost in all the info, the forums will help.

Im sorry if that sounds all a bit much, but through experience its the way to go. Also get to the library and read a book called ' the autistic spectrum' by Lorna wings. Its very easy to read and very useful for newbies to the SN world.

I know this, because my fifth son has the EXACT SAME symptoms as your son. And you may as well have been writing about my son. He was referred at 3mths due to FTT, and he didnt sit unaided until 10mths, he didnt make ANY progress between 1yr and 2yrs. He is still about the 1yr cognitive age at 2.2yrs. he doesnt speak (non-verbal), has poor eye-contact, doesnt 'play' or have any imaginative play (just tends to mouth toys or carries them arround) and doesnt do well in social situations - but seems fine-ish with his brothers.

Incidentally my Paed also told me that he was fine, and he is very obviously isnt... im still battling. but we have SALT (speech and language therapy) and 'portage' (inclusion). So just keep battling is the key. Oh and dont forget to insist on a dietician the next time you see your Paed, mine thought it was pointless as DS5 'isnt allergic to lactose' "so what do you want a dietician for???" i insisted. She put him on a milk free diet (incidentally its the milk protien (casein) he cant handle, not lactose!) and within the week i couldnt believe the difference in him!!! GOOD LUCK

{hugs} for your journey in this 'new world' XXX

Hi there. I think it's terrible the way you have been treated with the Paediatrician not listening to you or taking any action it was very obvious from what you had described that something was not quite right.

I really hope that things will start progressing for you and that your ds will get all the help he needs. Keep us posted on how things go x

Hi all wow its been a long few months i saw the pead back in April he was ill so saw someone else which was a complete waste of time didn't see why he was referred to physio grrr anyway i saw pead again om Fri i had a app at 11.30 and one for my daughter at 12.30 and got a bit pead of when people came in after me but got seen before me by my pead anyway he deiced to see me at the end of clink so we could have a long chat grr he could of told be we didn't go in till gone 1pm he has basic apologised for not listing to me my hv sent him a lovely letter as she was really peed of with him i am at the point now where he is having an assessment done i am hoping in september which will be great so i can get the help and support he needs he is also going to have a MRI scan which i am worrying about and more blood test and wee test i think pead want to find out if ther is a cause for all this or not he has had a hearing test but has to go back for another one which should be this month and is now going to be in Aug sometime i got to wait 6-8 weeks for MRI scan where Alex is at at the mo is hes 28 months in a few days he still only says mama Dada hiya when he wants to he still doesn't walk om his own he can stand on his own but just want walk he will walk around furniture and things its just so frustrating that the pead won't listen to me he though cause of his weight and things that's what he wasn't walking but hes not changed much if at all in the last 11 months he measured is head and its gone from the 50th a birth to the 2nd i think it was which he said hes skull or brain isn't growing as it should i looked up if he is austicked and a lot of the symptoms on there he has i asked the pead and he said he would be surprised if he was austic is anyone in a similar place to me or can give me any advice it just seams i am always waiting and getting no where

OT= Occupational Therapist. Sorry, when you've been banding the lingo around as long as I have you forget not every one knows what you're talking about!!

Hi thanks for your replay sorry i dont know what OT is i am all new to this

I went though similar difficulties with my second child who is now ten. She was diagnosed with failure to thrive when she was three months old and, eventually, they discovered she had a problem with lactose ( which she grew out of thankfully!) and out her on soya milk. She was also late sitting and walking and her speech was delayed. Eventually, when she was six, I paid for a private Occupational Therapist assessment and she has mild dyspraxia which I also have(!). I know what you mean about feeling 'fobbed off' as I went through the same thing for years. Try writing down all your concerns before you go and see the peadiatrician so that you don't forget anything and, above all, don;t give up!! Remember when it comes to your child YOU are the expert - not the doctor!!!  My youngest has cp and his consultant is always saying that dr's need to listen to Mums' more when they say there is a problem as, nine times out of ten, THEY ARE RIGHT!!!! Don't let them write you off as over anxious or paranoid - stick with it and keep going until someone takes notice they will eventually, believe me. I knew from when Kerri-Ann was around the same age as your son is that there was a problem. HAve you considered asking for him to be referred to an OT as they are the ones who have a lot of experience with conditions such as dyspraxia. Just a thought. Good luck and remember - you are not alone!! There are plenty of us on this forum who have either been through, or are going thorough, similar frustrations.

Hi i am a mum to 4 kids and i am concerned about my son i have been for about 18 months now i will give you a quick run though and see if you can help he is my 3rd child

he was born at 35 weeks need a bit of cpap and jaundice was in hospital for 11 days in neo unit he came home still a bit jaundice but it did go he was breastfeed till 10 months he stopped him self he was born on the 50 centail everything was fine till 5 months he was started on solids at 16 weeks and at 5 months he started not putting on much weight and started going down the chart at 6 months he had excema had it really badly all up hes legs and very dry skin all over hes weight cared on being low i told hv and eventual he was seen my a paediatrician they did a load of test milk allergy test gluten test etc cf test all came back neg he also has a heart mummer but been told its ok he carred on falling down to 0.4nd centail he was eating 3 meals a day he had jars and was having 2 weaterbix and 2 jars for lunch and 2 jars for tea and i breast feed on demand pead but it down to winter and bugs and things but it wasnt all over winter it stared in the summer i still wasnt happy but he said i will see you aagin at 18 months he was late sitting up at 15 months he was late rolling cant rember when he went from just under 50 centail to 0.4th centail in about 7 months when he was 1 in weighed 17lb 12 and 71.3cm long he started commando crawling and started crawling at 17 months and he was still down low on the chart at 18 months when i saw pead again he wasn't to bother and kept fobbing me off and what to discharge him and i said hes only just started crawling he isn't standing and isn't speaking so he said he would see him at 2 at  18 months he weighed 21lb 4oz and 78.1 long hes now 2 and weighs 23lb and 83cm long hes between 2nd and 9th centail for weight hes not walking he will pull him self up he will cruse along the furniture abit but not far he says da and mum, but that's it i asked hv to refer him to physio and the physio said that they could be something going on but wont say what and the letter i got said that he had hypermobile in his ankles and his feet rolling badly when standing and has referred him to emc for insoles splints and other and at the bottom says about globally delay hes been measured for boots/shoes its the ones the lady said about on the other thread i pick them up in may he only started weaving at Xmas thing is i am seeing pead again tomorrow and i want to know whats going on and get to the bottom of it so i can get the help my son needs but he always fobs me off hv has referred him for speech and language therapy we are on waiting list sorry its so long but wound if anyone could help thanks Nicky