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Achondroplasia

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  1. 16/5/08 20:39

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    ambiencebride

    Sally I have sent you a message as when I was trying to reply to your post the site seemed to have crashed.

     

    Fiona x

  2. 14/5/08 16:40

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    Sally313131

    Hi I hope you dont think I am mad asking this but were you at a baby group today Wednesday for mums with special needs babies.

    The reason I ask is there was a lady there with a boy that just looked like connor.

    I was there with my little girl and I just looked at your bump pics and I am sure it may be you.

    If am wrong please excuse this post

    Sally

  3. 14/5/08 16:40

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    Sally313131

    Hi I hope you dont think I am mad asking this but were you at a baby group today Wednesday for mums with special needs babies.

    The reason I ask is there was a lady there with a boy that just looked like connor.

    I was there with my little girl and I just looked at your bump pics and I am sure it may be you.

    If am wrong please excuse this post

    Sally

  4. 3/5/08 20:38

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    ambiencebride

    Thank You he is a sweetheart and thanks for your reply Sally

    Achondroplasia is a form of dwarfisim.

    Connor won't have any problems with his cognative development, but physically he won't reach his milestones as quickly as the average child. He is 5 months old next week and still hasn't much head control at all. His head is slighty larger and the hole at the base of his skull, which the spinal cord goes through is smaller, putting him at high risk of hycrocephalus and spinal compression. He is more than likely to have more problems once he starts walking.  The lower legs bow causing the knees to point outwards which also affects the back.

    I do go on the Achondroplasia Support site but was just wondering if there was anyone who came onto bounty who's lo had the condition too. It is quite rare though 1 in 40000!!

  5. 29/4/08 23:35

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    Sally313131

    Hi sorry I cant help with regards your lo condition I have not heard of it but I wanted to say he is such a cutie.

    Hope you can find some support from somebody who knows about it .Your little boy is the cutest chappy

    Sally xx

  6. 28/4/08 19:58

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    ambiencebride

    Hi i was just wondering if there are any members on Bounty who's LO have Achondroplasia?

    I have a 4 1/2 month old son who has the condition. We didn't know he had it until he was born although we had amniocentisis and a scan at 24 weeks.

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