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son just been diagnosed with ASD :(

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  3. son just been diagnosed with ASD :(
  1. 19/5/08 06:56

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    Hugdynsyl1982

    yeah my lo is starting nursary in september so this will be a big step as does not like the smallest change to his routine at all

  2. 18/5/08 15:41

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    Smiling at youpeestickaholic

    I feel really lucky (maybe its where we live??) because i only had to wait about 3wks from asking for someone to see DS, to actually attending the appointment. The SALT we saw was lovely, extemely approachable and very honest. We've been given a very simple task to do (simple but extemely tedious - still, if it helps...) before we go back in 3 weeks, where he'll review the situation and organise some home visits.

    just thought i'd mention what we're up to in case anyone else is at the same point,

    xxx keeley

  3. 18/5/08 11:42

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    HugMelancholyMissMelly

    dynsyl, ds1 had hardly any speech at 2, it's what made me approach the professionals in the first place. Now he's 4 and the boy doesn't shut up......ever!!!!!!! He wasn't using gestures either, he'd only wave his hand if someone was leaving, that was it. It was only around 3 that he started to link up words like "want drink." His tone is very strange though, it's very high pitched and jerky, you really need to tune into him to understand. He's really come on in just 2 years though. Ok he's still not like his peers but compared to what he was like, the difference is amazing!!!

    I think because your lo is still so young, it'll take a while to pinpoint exactly where he is on the spectrum. They will probably wait to see how his speech develops and make a more detailed diagnosis further down the line. Will he be starting nursery when he turns 3? It's quite important they see how he is with his peers too. The psychologist came out to ds's nursery to watch him play and see how he handled himself. He was only diagnosed properly a couple of months ago at age 4, so it's taken 2 long years to pinpoint where he was.

    It's awful not knowing and you must be worried sick. I know I was. I'm here if you need to chat xxxxx

  4. 18/5/08 08:56

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    ScouseBoots

    Peestick - my ds now 4half sounds similar to your ds at that age. He hardly had any speech, did not shake or nod his head and although had eye contact it didn't seem very good. He is also a loving and very happy child. I used to wonder how much he understood too.

    I was worried for some time about him but my dh wasn't and didn't want me to approach any professionals about him. When he started Preschool at nearly 3 they asked if they could refer him to a Speech Therapist and it was such a relief to me that at last he would get some help. We had to wait 7 months for the appointment though. He was diagnosed with a severe speech/sound disorder and we were given homework to do with him every day. After a slow start it really started to help and now he never stops talking although he still has difficulties pronouncing certain sounds.

    He was also referred to a Paediatrician by his Preschool and he has been diagnosed wth mild social communication difficulties. He is going to be referred by his Paediatrician to see a Clinical Psychologist (they can assess him for autism) in November and he may also be referred regarding his impulsive/hyperactivity issues.

    James has been tested cognitively (what he understands) and he is age appropriate but has poor listening skills although these are improving too with age. He has sort of taught himself to nod his head for 'yes'.  It's like he has started to notice other people's body language and understanding and copying it at last. He also shakes his head for 'no' also now.

  5. 17/5/08 20:59

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    Hugdynsyl1982

    we only have just got the diagnosis for it and it happy that there is some thing wrong with my  little boy but not in a way that hes going to need help all the time

  6. 17/5/08 20:37

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    Hugpeestickaholic

    DS5 is a smidge off being 2yrs, and also does not have any communication skills AT ALL - totally non-verbal, no pointing, waving, shaking/nodding head, nothing. We have just been referred to speech therapist.  So, we are just at the beginning of finding out whats wrong.

    DS5 is a loving, happy child, with a sense of humour, loves playing (rolling) toys cars, and slides. BUT, its come to light that he understands very little, hence lack of speech. Although hes 2 (almost) his developement is more that of a 12mth baby.

    I was wondering where you were in the process of diagnosis? how many assessments has he had? who referred him? Its always nice to chat to somenone who's in "the same boat".

    XXX keeley

  7. 17/5/08 16:52

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    Hugdynsyl1982

    does not have any communication at all ..

  8. 17/5/08 13:33

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    HolzNJess

    my daughter was diagnosed with ASD last year at 2 years 9 months shes now 3 1/2

    with help shes doing great with alot of things

  9. 17/5/08 09:50

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    Confusedpeestickaholic

    Hi there,

    when reading your post, I got a bit confused:

    "son is presenting with communication,language, social interaction, play and get upset and anxious when there are any changes to his routine"

    Does this mean that your son HAS communication, social interaction and play ...BUT still gets upset or anxious when there are any changes to his routine...?

    OR

    Your son DOESNT have communication, language skills, social interaction or play, AND gets upset when there are changes to his routine...?

    Sorry, i get confused easily

  10. 16/5/08 21:28

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    Worrieddynsyl1982

    he's two will be three in july

  11. 16/5/08 21:28

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    Worrieddynsyl1982

    he's two will be three in july

  12. 16/5/08 20:28

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    Confuseddynsyl1982

    not said where on the spectram but have had reports from speech and lanuage and she said shows many things that children have

    son is presenting with communication,language, social interaction, play and get upset and anxious when there are any changes to his routine

  13. 16/5/08 20:00

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    HugMelancholyMissMelly

    Hi, I do know what you're going through, it's such a hard thing to hear at first. I went through a whole range of emotions before I learned to accept. Pain, sadness, fear, guilt, anger, disbelief..that's just a few. How old is your lo?  Where is he on the spectrum? 

    There's quite a few mothers in here who have been through the same thing, you're not alone xxxxxx

  14. 16/5/08 19:04

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    Confuseddynsyl1982

    hiya all new to the bounty forum and have just been told my little boy as ASD

     

    What is every one else experiece of getting the best of children with ASD

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