Seth had awful reflux so he had the fundoplication done.  ( this is the tummy thing the doctor will have mentioned)  Definately helped with the reflux.

Thanks for your kind message. XXX

thanks 2 you all for replying, we have got offered an ng tube but we turned it down as we knowthat he wouldnt keep it in, when we seen the doctor he said that if there was any reflux he would need to do something to the stomach, will just wait and see what happens with this ph study and will go from there, he has never been sick so we r hoping that he dont hav reflux but the doc said he wants to make sure.

to seths mummy very sorry about your loss,  never know what to say, but just didnt want to ignore what you had written. r.i.p

My ds Jack had the ph study done after developing bad feeding problems which meant he had to be ng fed via a pump. He had a tube gown his nose for 24 hours which was attached to a little box. Jack had to stay in hospital for it. His nutrition nurse did say to us when they were discusssing a peg for him that it's harder to do in children with reflux but not really sure on the details. Good luck

Sorry.  Also forgot to mention.  Seth had awful reflux but needed the gatrostomy so had a fundoplication at the same time to help reduce the relux. XXX

Hi there.

We lost our beautiful 9 mth old son last monday to a rare genetic brain disorder.  He was very poorly and at 4 mths stopped feeding orally.  He was fed via an NG tube for 9 weeks but then the doctors decided he needed a gastrostomy.  He had a PH study done.  It was in for 24 hrs.  After that he had a peg fitted.  Pegs have to be changed for a button after 18 mths if not before but as we knew Seth would not live that long we opted for the peg as the tube is longer and was easier to access when he was sleeping.

It was very easy to use.  He had all his fluids through there and we never had problems.  I also met another mummy in hospital with a son who had CP.  They had lots of problems with feeding and said since they had had a gastrostomy he had improved rapidly in every way.

Not sure if I have been much help.  But go with what you think.  Good luck.. XXX

im sorry i dont have any experience at all of this, but i didnt want to read and run. Im sure that someone will know about it, hugs and love for now XXX

we hav been told that our 6 year old son who has cerebral palsy has now got problems with his swallowing mainly his drinks as the food we give him is very chunky and hardly ever mashed. we hav been told he needs a ph study done to check for reflux but coz of his age and the fact that he is very aware what is goin on around him as its only his mobility affected he has to go under a general anasethtic and hav the probe sown in to his nose so that he dont pull it back out, the doc also told us that if it comes bk all clear they will do a gastromy straight away as he had a bowel op when he was 3 weeks old and has a huge scar on his stomach that a peg would b no good to him and that it would be a out of stomach gastromy. has anybody elses child had this done as its all completley new to us.   sorry bout spelling,