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  1. 25/10/08 09:56

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    curlywurly1973xx

    hi everyone, what you up to for the weekend.  Today we going to a facepainting thing with my nieces (should be interesting!) ds said he wants to be a fly, like you do lol, i doubt he will have his done though lol.

    Tomorrow either walk on the beach or bowling depending on the weather, thats the plan anyway.  My mum wants the bowling but im not sure how that will work out as they are very noisy places....

    Hope you all have a good weekend x

  2. 23/10/08 21:27

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    Smiling at yourio2holt

    hiya ladies nice to see you back charlotte our halve term starts tomorrow melissa( has just been to her halloween party at school mason didnt go as not well i think he got a bit upset having to go to the hospital again so caused himself to have a upset tummy the appointment went ok and glad to say his heart is ok they had to see if it was ok due to his other conditions hope evry one ok

  3. 23/10/08 16:00

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    curlywurly1973xx

    Hi charlotte i was really pleased to see you back, I always miss one of you when you dont post for a bit lol.  What a little star, well done Adam.

    Jack has had a brilliant week im so proud of him - it makes such a nice change to enjoy them doesnt it.

    Hope you are all well Rachael x

  4. 23/10/08 13:16

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    chocaholic2007

    Hi all sorry not been on much its half term here so not really getting a chance to come on much. Adam as gone to the go kids go play aera with go karts etc there he as gone with his youth group team.

    He as had something to do all wk although yesterday his youth team never had anything planned so he was at home all day but I found out the local centre was doing a family crafts morning all wk we went yesterday for the first time adam was overwhelmed by the amount of people having breakfast as i was a free breakfast aswell but other than that he did fab. Adam made a halloween t shirt with grave stones pumpkins etc and his other brither made a t shirt with balloons on and his sis made a bag with balloons on. Today they have made grass heads and miniture gardens they look really good.

    Adam is doing really well and coping well espically as there is not much routine etc this wk but he as been really good. I can honestly say I have enjoyed having him at home this wk which I have not been able to say before. Well better go  now gets kids lunch on speak to you soon .

  5. 22/10/08 19:31

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    curlywurly1973xx

    hi everyone, parents evening went okay, she said hes probably above average intelligence but he just wont do any work and when he does he scribbles all over it , she agreed with me that he gets very over stimulated with the noise of a classroom and finds that hard to deal with, she also agreed with me that he will probably benefit for going to a special school, I feel much better since we have decided thats what we are going to do, it will be much fairer on him.

    I was wondering about Charlotte too. Im glad masons went well, thats brilliant news.

    Hope you are all well, love Rachael x

  6. 22/10/08 18:45

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    Smiling at yourio2holt

    hi ladies hope all is well hope the parent evening went ok masons was quite positive for once got to travel to hospital again i think ill buy a bed there it be a lot easier than the 3hr round trip on bus that we do lol   wheres charlotte hoping shes ok

  7. 21/10/08 13:50

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    curlywurly1973xx

    Hi everyone, glad to hear every one is feeling ok x

    Parents evening tonite so im putting my coat of thick skin on before I go lol.

    Well have a good day and heres to hoping they all had a good day at school.

    Rachael x

  8. 21/10/08 11:15

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    Smiling at youjaycorkatbai

    morning ladies glad to hear jack had a good day yesterday racheal , jay also had a good day ,

    hopefully it will continue ,

    not been up to much just general housework , darcies started to go up in her cot during the day to sleep so its a bit easier to get things done with out wondering what baileys doing wile shes there .

    jay saw a diatition before he got diagnosed to see if any of his food was linked to his behavour , only thing she suggested we change was coffee to decafinated , my aunt gave him the coffee in the first place , it wasnt some thing i wanted him to have it just one of those things he set his mind on .

    hope everyones ok vick xxx

     

  9. 21/10/08 11:13

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    Smiling at yourio2holt

    hiya evryone hope all well nice to hear that you had a nice treat vick you deserve it hi rachel we cut out sugars as much as possible although he didnt have much before we have not tried other things but i see no harm in trying exclusion diets but be worth asking a doc

  10. 20/10/08 15:51

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    curlywurly1973xx

    hi everyone, how are you all today?

    my son had another good day at school today so im so happy today.  The ritain certainly seems to be helping him, well so far anyway, one day at a time.

    Anyone here every tried cutting out wheat etc, ive been reading up on it, but because he has asd he is very particular about food and loves bread and he is also very small for his age??? anyone tried a particular diet that worked?

     

    x

  11. 19/10/08 09:45

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    curlywurly1973xx

    oh wow, bet that made you feel better, what a nice thing of your hubby to do, bless.

    Glad it made you feel better and that you had a nice meal

    xxxxx

  12. 19/10/08 09:36

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    Smiling at youjaycorkatbai

    morning ladies , thanks theresa i missed you too .

    glad mason appt went ok ,thats along time on the bus jay and cory would go nuts if they were on a bus for that long ,

    racheal lol, it does take some time for them to get the dose right it doesnt sound like he will need much more , i understood what you meant lol. jays takes 20mg first thing and again at midday and again at 4pm ,

    i had a lovely supprise yesterday , mark said we were going out to get some candels i like when we got there he handed me an envolope , mark and my best mate had paid for me to have a day in a beauty salon , i had a hot stone massage a facial mannicure and peddicure i had 3 and a half hours of no kids it was bliss i was totally supprised

    then we went out for a meal last night with a few friends being 30 is not so bad lol .

    hope your all ok and having a good weekend vick xxx

  13. 18/10/08 19:21

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    Smiling at yourio2holt

    hi ladies hello vick so lovly to see you back again missed ya its sounds like you had a crappy time of it latly and a crap birthday to boot i hope jay settles a bit for you just been to hospital with mason to nurology apointment it was to see if his nerves are working in his legs and arms so had to have some electric impulses put through his legs and arms glad to say his neves are ok there unlike his head it just so tiring as it takes 1 and a half hours on a bus to get there then the same back all for a ten minuete appointment plus i had to take my two youngest with me also aswell as mason and of course jasmyne was sick on bus fortunatly i had a spare carrier bag with me not plesent at all oh well not to worry hope all ok catch you later theresa xxxx

  14. 18/10/08 12:04

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    curlywurly1973xx

    Hi Vicky, ive just thought about what ive said, im such a thikko.  Jacks on 12.5 a day as his tabs are 5 and he has 2 and a half tabs per day.  I wouldnt be surprised if they up his dose as i think its working but maybe not enough.  Its just scary at the thought of him having more than that.  Sorry for being so dense lol xx doh.

  15. 18/10/08 11:40

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    Hugcurlywurly1973xx

    its so difficult isnt it.  60mg, gosh thats huge! jack is on 5mg at the moment.  I dont blame you for taking him off it, you definitely did the right thing.  Obviously they will have to up jacks as he grows, so we will have to see how it goes - I hate the thought of having to give him a bigger dose.  Itsa no win situation isnt it.  I really hope his behaviour improves for you hun x

  16. 18/10/08 11:30

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    jaycorkatbai

    hi racheal .

    jays been having a break from it since april , i took him off it cause he was really skinny and looked ill his eyes had dark circles around them he had been the same shoe size for 2 years as well , since coming off them hes gone up 2 shoe sizes and looks alot healthier . jay takes a high dose of 60mg a day

    and has done since they got the dose right so about 5 and a half .

    if you read up on ritalin ,it says they should have a break roughly every six months as it stumps there growth suppresses there appitite ect .

    jays tried lots of meds and ritalin is the only one that worked , i remember in the first few weeks he walked around like a zombie i was close to taking him off it once his body got used to taking it he was just like any other child .

    now if he takes it hes like a zombie again cause he doesnt take it regular .

    he now refuses to take it at school because it makes him withdrawn he doesnt want to play with the other kids .the rate hes going hes going to have to start taking them again xxx

  17. 18/10/08 10:44

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    Hugcurlywurly1973xx

    Hi Vicky, sounds like you are having a complete nightmare, big hugs.  Is it the school that said he couldnt go on the trip? if so, I think thats unfair.  Fair enought they have to learn right from wrong but it does zilch for their self esteem always getting told they are naughty at school, this is a big gripe of mine at the mo.

    Jacks going up and down - its only been a week and a definite improvement, had a dip for a couple of days and is on the up again, i guess his body is still getting used to it.  Touch wood and everything else, its not messign up his sleep or appetite thank god.  I phoned the school up as im sick of only getting negative, if i feel crap for it how must he feel, Friday they were really positive about him and he got top of the behaviour chart, first time ever on a Friday.

    Why is Jay having a break, have the doctors told you to give him a break to see how he is without it? I hope you sort his medication again soon, I must admit, I dont think I could be without it now I have seen how it changes them from what I can see is for the best - chin up mate, im right with you on feeling poo about behaviour, its like a living nighmare xxxx

  18. 18/10/08 09:23

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    jaycorkatbai

    hi ladies im so sorry i havnt been on for a while ,

    jays behavour has escalated at home school well every where hes been a total nightmare lately

    because of his behavour at school hes been banned from the school trip nxt week to the cinema and the school disco ,

    at home were having to move cory out of there bedroom and put him in with bailey as jay punched cory in the face early hours of thurs morning while he was asleep ,i woke up to screaming .

    jay also tried to run infront of a moving car on thurs i had to restrain him to stop him .

    it was my birthday on thurs and all he did was kick off .....

    hope your all ok will have a look at the posts i missed in a mo .

    racheal , jay has took ritalin from the age of 5 if you have any questions about it feel free to ask hun just seen your thread about the meds , jays on a break from them atm deffo goin back on them asap vick xxxx

  19. 17/10/08 16:43

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    Smiling at yourio2holt

    hi ladies how is evryone just got mason anual review date wich is tuesday 11th november this is the deciding one they brought it forward as its supposed to be march but march is when they make all the desitions for school admitions for next september im not sure how long after the review you get a answer or wether you have to wait till next march to see if you get your places im not sure wether it be stated in his statement when they send me the finalised copy about 8 weeks after the meeting

  20. 16/10/08 18:17

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    curlywurly1973xx

    great news charlotte.  We are also looking into special school for jack as its expecting too much of him at mainstream and i feel its unfair on him, have had his review bought forward to after xmas.  How long does it take after the review to get an answer do you know?

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