the test came back fine im so relieved

i've got everything crossed for you hun, im sure its just a precaution but doesnt ease the worry anymore. let us know how you get on. xx

and now my dd has to be tested for cf im gutted can everyone cross wat ever they can her test is on 22nd

he can walk at the mo he is fallin alot and finds it hard to climb stairs when i try to talk to df or family they just say you shouldnt think of the horrible things just think of him now but i find it not to think about the future they say with the worse condition of muscular dystrophy which is wat he got they live till there teens which to think i was 18 wen i had him i find it really hard to think my son is gonna die before i kills me

excuse me for gate crashing, I'm afraid i know very little about the condition but what i do know is there are a lot of professionals who do know a lot and are there to give you and your son support.  Have you contacted your local childrens hospice? (I know its a scary prospect, but if you make some introductions and see the place they're lovely and can offer so much support), also have you looked on internet for support groups or other parents who may understand what you are going through.  You must try and look after yourself and you will not be able to bottle it up forever.  Just take care and don't be afraid to ask for help!

why dont you just talk to your family like you have on here, is it cuz its through messages so not face to face? i take it your family know about his condition and surely they should help you with day to day tasks with him? has he got it very severly? as my hubby's brother found it hard to walk and was in a wheelchair at a young age until the end. has he been given life expentancy i know thsts a tough thing to ask but just wanna help you as you shouldnt be going through this on your own.

my little boy is 4 years old and was diagnosed wen 6 weeks old i was only 18 and never heard of it in my life it hit me really bad i never thought i would cope but now we try and live every day as it comes but still find it hard coz i got no one to talk to and iv kept everything in for 4 yrs now and dont really no how to talk about it

thanks for replyin

aw hunni, im not gonna pretend to understand because i dont. but i do have a mother in law that went through 13 years of it. it took her 5 years to get her son diagnosed as back in the 70's it wasnt really heard of that much. how old is your little one? how did it come about you getting a diagnosis for them? how much info have you been givem. sorry for all the questions.

im finding it hard to talk to any family or friends about it no one understands wat im going through and they tell me they no how i feel and they dont understand a thing im going through and finding it harder to deal with just holding everything in

hi there, my husbands brother had duchenna muscular dystrophy. i have been talking to mu mother in law and she has plenty of advice and experience with it, but it depends what you want to know hunni.

feel free to pm me netime.

hi i have a son who will be 4 on tuesday and has dmd just wondered if there was any one else with children who has this