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can i have some advice please about my 6year old ds.. thank you xxxx

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  3. can i have some advice please about my 6year old ds.. thank you xxxx
  1. 26/8/08 23:21

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    curlywurly1973xx

    Didnt want to panic you but just saw that another lady mentioned adhd, my son has been diagnosed with both - from what I have read up on the net there is a thin line between them, but out of my experience only, he does sound extremely similar to my son who has full time one to one in mainstream x

  2. 26/8/08 23:18

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    curlywurly1973xx

    My son has asd and he was and is the same from your description of your little man.  Push for an assesment, good luck xxxx

  3. 26/8/08 19:26

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    Hugsp1rit

    sarah thank you hun his teacher is the same as last year no change so she isnt the best there is she has to many children and 5 with special needs. One has a support worker so her time is else where so he gets over looked. I am seeing the school nurse so i will ask her to refer us to the school doctor and see what happens. I know i can go private but again they dont follow up so i may do that and then go back to my gp and show him the diagnosis and then ask him to refere me to another pead!!! I am at my hospital alot so it wont make any difference to me i am there monthly!!! Thank you again sarah hun i appreciate it xxxxx

    I dont know who is the SENCO at ades school at all.. can i find out at all? I have had 6 appointments with the head and his teacher they say obbsessive with rubber, has flipped when things mved, lines up things, talks to self in another language, in his own world alot, popular with his peers but wont play for long, odd with hi water bottle and germs. He also has a reduced bladder capacity so he has to drink a certain amount at school and took me 6 months to prove to them he needs to with several letters from the schol nurse to say he needs to drink x amount!!!! So i am up against it!!! Thank you again hunxxxxx

  4. 26/8/08 19:19

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    Hugsp1rit

    Ladies thank you so much for your help i really appreciate it and to know there are other being driven mad.. but have a diagnosis.. i think its gonna take a while longer yet.. but i will get there!!! Sharon ade is just like your dd he will walk into everyone and everything.. he sees people and walks into them you have to move him out the way, falls over nothing, I know there is a prob so you have given me the confidence to be a pushy horrible women that stamps her feet so maybe a few tantrums from me??? I have the school nurse with him on the 9th sept so i will ask her to arrange an appointment with the school doctor seeing as the head wont say there is as they have several special needs children in his class already, a downs child (he is lovely his support worker wuith him in the morning then she goes) and girl with cystic phbrosis (sp wrong i know) and several adhd children so ade gets over looked. |He is bright in matsh year 3 standard already but writing its bad and spelling very bad.. reading he memorises the story whcih the school havent picked up on and is on year 3 books almsot!!! So i will stick with it.. can i ask the mums with children on the asd have the gone back wards in there eating at all? He used to be fine at eating now its like feeding time at the zoo he has to eat as quick as and his hands are in it sleves etc he gets in a mess... Anyway thank you all so much xxxxxx

  5. 26/8/08 19:19

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    Smiling at youRosieRabbit

    Hi,

    I am a teacher and a SENCO in my school. I haven't read through all the replies but thought I'd give you a bit of info from a school point of view.

    The first thing i would do is make an appointment to see your doctor and explain all the things you have said in you post to him/her. Even write a list of all the problems you mentioned now. The doctor will probably refer you to other professionals and he'll require an assessment.

    I would then go and see his new teacher as early as possible in September and explain to them what problems you have at home with your ds.

    Also ask to speak to the schools Special Needs Co-ordinator. Tell them the problems your ds has. They may have some advice for you. Tell them you have been to the doctors. If they want to refer your ds it is alwyas easier to do if more than one professional (teacher and doctor) has been involved.

    Don't let the doctor fob you off saying its perfectly normal. The school should help you with any referals that are to be made.

    If you want any more info pm me.

     

    Sarah xx

  6. 26/8/08 14:08

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    crazymumof2

    omg hun big hugs i would def get a second opion as he sounds wprse than my son and already they have said he aint normal and that was after 1 appointment it doe sound like serious case of autism from what i have researched and poss adhd

    my son has just turned 3 and he bangs head hits himself bites throws things and he is major danger to his younger and older sister he actually pushed his 8 month old sister over today nearly banging her head on brickwork and then went to dive on her all because he wanted the toy she had he climbs shelves hea\asdvutts doors windows walks on window sill climbs out of woindows if they open (have to be locked on latch in summer) he has sat cutting his fingers with sisors before and speech well even speech therapist is struggling with him as he canb only put 2 words togeaher and only a few and not clear he barley says anything he can say daddy working jcb working but he says bbbworking lunch time tea time he says one for any meal time so he dont under stand he hates cuddles hates been around groups espec of kids

    and this all sounds mild compared to what your going through and with you been pregnat (congratulations by the way) you need help clearly it was hv that refered me as docs hv wouldnt listen they all said he was normal what ever that is and we saw pead few weeks bk gotta go bk in few weeks when we get appintment and she did say his brain aint developing and even tho he is 3 his brain is a 18month old brain and so its like our son has been 18 month old for last yr and half as he started at 15month old woth really bad behaviour

    so i really hope you can get the help and support you need and deserve but please go bk for another oppinion

  7. 25/8/08 20:23

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    Hugshazb71

    I meant to say she is also like a bull in a china shop if there are people coming towards her ie on path she will just head straight for them, she has knocked a grown man flying before now, i always have to appologise for her wherever i go, she is also very clumsy. The list is endless. So i know what you are going through, does you son still wet the bed? Sharon x

  8. 25/8/08 20:11

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    Hugshazb71

    Hi i hope you get your son sorted out. My dd sounds very similar to your son she is 6 also. The only difference is that i have never seen anyone, i have had a feeling something is not right since she was younger, she was very delayed in her speech, she also didn't like loud noises she is a bit better now but the tantrums were terrible i hated taking her out shopping, even now her speech is not the best she says cut for put, men for then, and says sentences back to front even though you have just said it right before, she is quite behind in school she is still at reception level and she is going into year 2 in Sept, she is very stubborn, also she is very frustrated. She is very hyper, fidgets alot and on the go, the teacher makes her sit at the front to keep an eye on her. She also has an obsession with certain toys, she as always had a thing for dinosaurs and dragons she as loads of them, she took a big remote controled dinosaur to her nursery and made this little girl cry as its eyes lit up and it moved and swung its tail, bless. She isn't afraid of eye contact though but she is very naughty, if you tell her off she will go to her bedroom and rip her sheets. She also has a habit of picking herself arms and face mainly she as had impetigo twice, and she only likes wearing pink it has to be pink otherwise the tantrums are unbelievable sometimes they are embarrising. I am going to have a word with her new teacher after she as settled in and see what is going to happen i don't want her getting too far behind. She does have a lot of friends though but she as to be in charge. I am wondering if she has hearing difficulties i don't know, her dad keeps saying there is nothing wrong with her it is her personality, but something is niggling at me. Good luck. Sharon x

  9. 25/8/08 16:37

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    Good lucktherealkatemoss

    I feel for you, I really do, and I recognise so mch of the behaviours you describe in my own son (also 6). He headbanged violently from 20 mnth, slow speech & language, at traffic noise he would get very alarmed and run to the back of the house. Little eye contact, not responding to his name, limited and repetative play, aversion to being touched, tantrums that could easily last up to 2 hours and that he could not be distracted from or consoled. It was hellish. I had a great HV who took my concerns seriously, and I made a full list of behavoiurs and took it to my GP, was referred for hearing test where the dr recognised autistic traits, which was what I had thought myself or a long time. We were then referred to a child development centre at Paeds clinic, but health professionals are very reluctant to `label' children at a young age and parents have to be prepared to be pushy.

    The best/ most practical and contructive people I have dealt with are the Child Primary Mental Health Team, and I can't recommend them highly enough. The best advise I can give you is to not take no for an answer, insist that you get a referral to a child development centre, get your school's SenCo involved, your school nurse, get the school to do a Boxall Profile, get them to keep a diary of incidents examining triggers, behavoirs, strategies for dealing with behaviours, you MUST MUST get your child seen by an educational psychologist at school, the more agencies you can get involved the better. You are fully entitled to insist that your child be seen by Ed Psych and if the school are uncooperative you can go directly through your local authority.

    My own son was fortunate enough to benefit from early years intervention from the age of 3, his class teachers have woked out individual education plans for him, which we review together 2-3 times a year focussing on encouraging appropriate social behavour, and he now has a statement of educational need which entitles him (and the school) to government funded assistance in the classroom. ALL PARENTS ARE ENTITLED TO REQUEST ASSESSMENT FOR THEIR CHILD.

    I hope I've been of some help, even if it is only in knowing there are people in similar situations who understand what you are going through. Start with your health visitor and insist that your concerns be taken seriously. Good luck to you love, let us know how you get on. X

  10. 25/8/08 16:24

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    Kate07

    I would advise you to get a second opinion.  I have a son who has ASD and from what you've written he does show some traits, but I am no expert, only with my son!!  We have a child development centre near us and that's where my child was assessed after being referred by gp and then paediatrician.  Hope you are ok and your son has calmed down.  I know what it's like, it's heartbreaking.  Sorry I'm not much help.  Take care.  Kate x

  11. 25/8/08 14:18

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    Worriedsp1rit

    Hi i am in desperate need for help!!! I have been to the gp been to see peads and no help at all they just say behavioural problems. I will start with whats going on its a bit of a list here goes... he has always been a demanding child head banged from 5 months roughly always had tantrums, always played on his own, slow speech development. He caight up then he changed at 2, he would scream at sirens, fire alarm, loud noises, go a way he has never been, have tantrums if fav toy lost etc and then he started biting himself and pinching himself etc. This carried on and then (now 6)  it got to him fitting himself, puching himself, rubbing knuckles on paper and walls... picking his skin,  obbessive over certain toys.. he destroys all the others like cars, garages etc all normal toys transformwers.. all he loves is his lego blocks, lego train set to build and his knex.. he has to build and draw if he cant do that then thats it. He is currently having a major tantrum creaming shouting and hurting himself saying a model he built has been changed and has been going for 15 mins and wont calm down at all. He said its ruined we have asked if he wants it apart thats met with no and told him to say whats wrong but he cant!!! He is obbssesed with his lego he gets violent over it. He has to repeat everytinh 10-15 times, hates music, hates ppl looking at him, hates eye contact etc and cant run properly, balance, major problems with literacy at school, has an amaznig memory show him a book once he has remembered it.  He has little or no friends at school as they say he is weird as he talks to himself and answers himself... He bites his cheecks his fingers etc cant physically sit still sits and grunts all the time... And hand flapping loads, talks his own language!

    As i have said his pead said he is normal and what he does is perfectly normal she cant see any problems. She did the asd assesment with the questions she filled in and said all with in normal range and there is nothing wrong with him. He has a hc of 22inches but it looks very large and he has very small facial features.  He has just sort of calmed down and now but screaming and picking his skin.. he does it and he calms down.. i cant physivcally restrain him as i am 15+6 pregnant and high risk (my placenta can abrate at any moment till i am 18 weeks due to previous late loss at 17 weeks due to placental abrasion) I want to help him as i am told its "normal" god i hate that word...  but if anyone has any advice please please i would love to hear it.. the list goes on with what he does.. He is also obbsessed with food...rubbers and germs.. I just want him to have friends like all other kids and not shut himself out by doing strange things.. help!!! I have a 4 year old and she is fine does nothing like he does. I know i have made no sense sorry just desperate!!! As he is my first and my lil man and means the world to me!!! It was a community pead i saw and also i have spoken to his teacher and head aprart from the obsessive behaviour they say all is ok despite them telling me different. They told the pead nothing that they tell us!!!! I have posted this in school aged children and was adviced to pop over here so i have. Thank you for any advice in advance i appreciate it xxxxxx

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