just wondering if any one's child as this syndrome

 Lucan is 10 months old and as being digonised with this syndrome. my brother is 18 yrs old and wen he was baby he got digonised with beckworth widerman syndrome but the gentestics thinks that my bro was wrongly digoinsed and actually as this. Im 17 weeks pregnant and have to have heart scans and pregnacies scans and lucan as got to have stomach scans every 4 weeks til his 7th birthday .

Lucan was born 9 weeks early back in oct 07 and he weighed 3lbs 13 1/2 oz  if he was full term he would of being a big baby

Lucan has got extra nipples and was born with Metopic craniosynostosis fusing of the frontol bone 2 early  and lucan aslo as duplex kidney on his  right side . Lucan as feedin issues as well he is gastrostomy fed with mic-key but they not sure if this linked to the syndrome or just becuase he was early as alot of early babies are fed by tube.  Lucan was born early due the fact of i had a scan at 30 weeks and found out i had 2 much fluid and they found out lucan head shape were lemon shaped and put it down either patuls , edwards or downs sydrome so i had Amniocenties test done and this put me in to premature labour day before lucan was born i got the results back and he didnt have patuls or downs but edwards came back incoinsive had had  to re grown the chromozone edwards came back clear after lucan was born.

as im 17 weeks pregnant im a bit nereves how this will affect my baby but were not going to abort this baby  Im going back to see genstits later on this year with my brother  at he mo my head is all over the place hope i have made sense with every one im only 20 years old and went to a special school and takes a while for me to gt my head around things i have to have my partner to explain to my family as i will get mixed up

love kirsty

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