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Ineed to let of steam, my 2 year old is being assessed for asd, and i spent all alst week in hospital with her on a drip

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  3. Ineed to let of steam, my 2 year old is being assessed for asd, and i spent all alst week in hospital with her on a drip
  1. 1/9/08 20:09

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    bayliss97

    Thanks to you both.

    Sarah, well she has a massivily huge developmental assesment cming up in december, then in Januaray she'll ahve the PDDAG

    She'a alreday under salt and we're all under a child psychcologist, the ot gets done at the assesment, at the moemnt its jsut a waiting and guessing time......

    we've bene more or less to expect this form Charlotte as a norm when she gets ill because she has that stubborn streak too,

    Books dont always work, she loves books but she cant seem to connect the book to the object ??? FOR EG if i read her her upsey daisey lift the fla, and if i get her upsey daisey doll out too she jsut doesnt seem to make the connection between doll and picture of doll.

    SALT are hoping to do those card thingys where they get the child to bring the card with the picture on of whatever they want but they are not even sure if thats still going to work as she can tell the similarity between 2d and 3d correlation.......

    We have also been told she is the youngest child in Swindon-wilstshire to be undergoing a PDDAG this young

  2. 1/9/08 12:26

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    Smiling at youDonna2512

    I have two with autism and neither of them will take medicine either so have to resort to suppositories when they're ill. As for the not drinking, don't think eating matters too much the only thing I can think of is you offer daughter something that she isn't allowed very often. For my son it's pepsi max if he won't drink anything he will go for a can of pepsi maybe a fruit shoot or something in a special bottle. When mine were younger I used to let them have a baby bottle because they do like sucking. Could you try ice lollies or even ice cream? No other real suggestions but agree photos could be useful. Hope your daughter's feeling better soon.

  3. 1/9/08 08:30

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    sarah36Harper

    Hi bayliss... it sounds like you had one hell of a week.. I know it kinda sounds a bit like "after the horse's bolted !" but ..have you tried putting together a photo book, with pictures of the doctors surgery...the hospital...a nurse...a doctor..etc ?  So that when charlotte has to go to hospital / doc's..she has a visiual image of what's going to happen ? This is a technique used by SPLT - Specialists with children who have been diagnosed with ASD -- there is also the use of visual timetable ..How long before you see the specialists for a diagnosis ? It sounds like you could do with seeing them sooner...if for no other reason that giving you some practical advise for every day... You should have seen an OT and SPLT by now at least ? give me a shout if I can be of any further help... take care.. stay strong .... and believe in yourself as a parent...90% of the time..you will know what's best for charlotte and will be doing just the right things to help her understand  x

  4. 31/8/08 21:00

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    bayliss97

    Why ?? you ask ???

    Well here goes.

    My daughter is 2 and a half her name is Charlotte, she has no ciommunication but is a reasonably happy child providing i am able to guess what it is she wants, and if i cant figure it out woe betide me.

    Anyway heres the last weeks countdown.

    Tuesday week before last Charlotte starts to be sick, i demand home visit form gp as she freaks out at gp surgery.

    GOP checks her tummy with alot of fighting yet does not bother to check ears etc etc.

    Wednesday after a night of crying i take Charlotet to gp surgery, turns out she has ear infection.

    Charlotte wont take any medicine of a spoon apart from medised so get given antibiotics to mix in yogurt.

    Thursday, Charlotte refuses to eat and refuses to drink,

    Friday refuses to eat refuses to drink passes one wet nappy

    Saturday refuses to eat refuses to drink

    take her to out of hours doctors based at hospital, they admite her

    Takes, 2 nurses myself and then the doctor to pin her down so they can examine her,  then she just lies there not moving the rest of the day not drinking still and not eating

    then they ahe o pin her down to get drip into her as she is dehydrated.

    Sunday afternoon, starts to try to pull drip out of arm screaming the place down because she doesnt understand whats going on.

    Monday morning has perked up, but spent the whjole night having night terrors because of the trauma of being pinned down for variuos examinations and obs they have to do.

    Monday night allowed home as finally drinking.

    She now drinking and eating fine again, but is this to be the norm every time shes ill, the last time she had ear infection about 8 mths ago nearly the same happenned but just as they were going to admite her she decided to startd rinking and rank fluids so they allowed her home.

    Does anyone elses child behave this way when there ill, its as if she just gets ill then jsut doesnt care , and drifts of into her own world and as i can communiacte with her very well all i can try to do is hug her and try my best to reassure her whilst she is bellowing screaming, thrashing and making herslef sick when being examined..

    sorry to rant

    Karen xxx

    Monday

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