Hi, I've been to the drs this week as my 3 week old DD has one about the size of a 50p on her right bum cheek. A couple of nights ago it started bleeding, so we've been refered to the hospital to have it checked (and also to check her clotting).

The dr told me that it will probably grow until she's about 8 years old and will then start to fade. However, because of where it is, they may need to keep an eye on it in case it needs treatment.

My appointment is on Thursday, so I'll post after that.

It's all quite a worry as she's so little.

Jo xx

Hi, my first son had one on the base of his back and it kept growing but suddenly stopped.  He is 3 1/2 now and you would never now it was ever there as it has completely disappeared.  My second son also has one in exactly the same place, he is 10 months old now and it has stopped growing.

my dd had one on her forearm.

It started as a tiny mark, but went to pillar box red and covered most of her forearm, i was also told that it would be gone by a year, but as shes 12 now i cant remember properly but think she was about 4

hi hun

i had one of these that develped when i was a baby. i have photos and its looks massive. iam now 25 and have no marks or anything to say it was ever there. also a little boy at our baby group has one on the side of his head and another little girl has one on her belly. i know they can look abit scary to those who dont see them alot but your baby is still butieful and as cute as ever. it is a shame the hospital cant do anything about them but they will disappear.

its awful when people stear, my little boy as one leg shorter then the other and it really winds me up when people look at him diffrently to other children.

i hope it doesnt get to big for your little one andgoes away soon. i think i was around 1 and a half when mine went xx

hugs to you all xxx

My friends little boy has one of these and it is over one eye and at its biggest it was making him close one eye a little I would say it was the size of a golf ball,he is now 4 and it has almost gone away and she researched all options but the safest way was to leave it alone,there are support groups for this do you have any details?If not I can find out from her the details

She did suffer a lot from comments of people so I know how you feel,people can be sooo rude

Little Adam looks great now and its barely noticable

My son had a tiny one on his eyelid for 5 years and then it went. It will probably go it normally does before they are 5 xx

Hi sian

Thanx for the reply, i keep being told that hemangiomas are extremely common, but havent yet  met anyone with children who have had the same! We have been through a real bad time with all of this, especially cos people can be very insensitive.

riley has already been seen by his own G.P who basically said that it will go by the time he is a year old! What a joke, we had already done loads of research and read that large ones can take up to 10 years to involute completely and theres a chance because of the size of it, his skin could be left baggy. Great! We were relieved to start off with that its on his scalp but now its got so big its gone beyond his hairline onto his forehead completely covering his fontanelle. The hospital are doing a brain scan on him just to check where the blood vessels are. They have only done that because we made such a fuss that no one was helping us. When i said to our G.P that we didnt want Riley being totally disfigured by it, his answer was that children adapt!!! Could have swung for him.

People can be very cruel and i cant bear to see our LO suffer. What treatment has your daughter had. Our local hospital trust offers nothing for hemangiomas, we have been told that it will go when its ready. we did ask if they would do corrective surgery when its completely involuted, but they said no, unless Riley has emotional problems relating to it.

I dont know how other people cope. He is so beautiful, i'm scared we wont be able to protect him from people when he is older.

If you or anyone has any advice, we'd be very grateful

XX

hi lisa,  my 1 year old daughter has a strawberry birthmark on her face and it was growing very quickly, we were referd to alderhey childrens hospital in liverpool and my  daughter has now had to operations to stop the growth.  u really should see a doctor as they can grow to be very large. my daughter had hers treated as if was growing towards her eye and blocking her nostril.  Although some can b completely harmless and just fade as the child gets older. but it is always best to get some medical advice to be on the safe side.  if u want to talk feel free to get in touch with me at tialou13@hotmail.co.uk

I hope everything is ok for your little boy, i know how hard it is, x

Hi everyone

I’m not sure if anyone else has had the same sort of problems as us. My son was diagnosed with a deep cavernous hemangioma or strawberry birthmark when he was 7 weeks old. It has grown at an incredible pace and is now nearly 3x3 inches and rising upwards. Its fire engine red on a big lump thats surrounded by whitish blue sretched skin.We have been told that it could keep growing till he is 18 monts old which terrifys us as it is on the front of his scalp and crawling down his face. There are no treatment offers as even though its a vascular tumour they are classed as harmless. We know that it can take up to 10 years to totally dissapear and that because the only issue with them is that they can be very disfiguring on a child that the NHS will not treat him as it would be for purely cosmetic reasons. If he suffers emotinally when he’s older then they might reconsider. We see our son as a beautiful little boy, but other peoples reactions and especially other childrens reactions who are brutally honest can be so hurtful. How do other people cope. 1 in 10 children are sposed to have these, but when people ask what Riley has and i say its a hemangioma, no one has a clue what i’m on about.

Any advice would be welcome.

Thanks

Lisa XXXXXX