fragile x syndrome
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- fragile x syndrome
17/10/08 22:05
7/10/08 16:53
bump
4/10/08 19:25
http://www.fragilex.org.uk/ is a good support group.
2/10/08 10:52
thanks mum!
anyone else no of anything?
x
1/10/08 20:56
HI Karen, I posted a reply the 2yrs+ board.1/10/08 20:28
hi all, im from 13/18 months but am here seeking some advie for my brother.
his son who has just turned 4 has just been diagnosed with fragile x syndrome, up until now none of us has heard of it and they havent been gicen much information at all just just wondering if any of you out that has a child with it or no of it that could posiibily pass some information over. many thanks, karen xx
I would really recommend Contact A Family- they have loads of info conditions and also have details on support groups etc that may be useful.
hope that helps
x