I know it is a spectrum, so some children are only mildly effected and others more so.

Boys are 50% more likly to be effected than girls

This is useful:

 

http://en.wikipedia.org/wiki/Fragile_X_syndrome

The only experience I have had of this is when I was a teacher and there was a family in the school where all 3 boys had Fragile X syndrome. Their sister was OK and I think it only manifests in boys but girls can be the carrier, I believe it is passed on through generations. The boys all had behavioural and social problems and were delayed in most areas of their learning. They manages in mainstream school up to a point and then need to be transferred to special school with smaller class sizes and a better curriculum to cope with their needs. I'm afraid I don't know what the long term prognosis is but believe it is a learning difficulty rather than a medical/health condition. I hope you get some more information. Maybe do a websearch, I'm sure you'll find a support group which can give you first hand experiences rather than a medical site which just tends to give you hard facts which can often seem scary. Best of luck.

Hi Karen, I'm afraid I don't know a whole lot about fragile X, but post this question on the 'special needs' thread, I'm sure someone there will be able to help.

Lou x

hi all, im from 13/24 months but am here seeking some advie for my brother.

his son who has just turned 4 has just been diagnosed with fragile x syndrome, up until now none of us has heard of it and they havent been gicen much information at all just just wondering if any of you out that has a child with it or no of it that could posiibily pass some information over. many thanks, karen xx