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  1. 2/6/08 14:58

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    Smiling at youcarolis

    I know exactly how you feel Donna. It's other peoples attitude that hurts.

    My little girl was born last year at 23 weeks weighing just 1lb. She's 13 months old now (9 corrected) and weighs just 12lb now. It's a constant stream of appointments but at least you feel that something is being done.

    She doesn't even sit up yet or make any noises so people assume she's only around 3 months old. I have had wide-eyed stares too when I have fed her outside!

    All the docs/paeds/therapists only concentrate on what they CAN'T do rather than what they can. My little girl is a really happy, content wee baby just like your Aiden but it can sometimes feel so negative with outside opinion.

    Glad to hear he's doing so well so maybe my Rachael will be crawling round about the same time. As you said, she will probably be running rings round me in no time and driving me insane!!!!!!

  2. 2/6/08 13:08

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    Smiling at youSillywabbit

    Just wanted to encourage you Mums of these little ones,  my ds was born at 27 weeks 1lb 8oz in hospital over 3 months with about every prob he could have.....

    Anyway his now 12 +  Fit as a fiddle and has been for years, has ADHD But is less of a prob it seems as his getting older, now into karate and just joined St Johns Amb as a Cadet

    Looking back I would never have thought this poss from that little helpless babe,..

    Be happy girls and enjoy every day with your little ones, before you blink they will be as tall as you

    wabbit x x

  3. 29/5/08 19:03

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    lesley308

    aww bless! emma had her peidro boots at about 18 months (14 months corrected) and in all honesty they were a bit too heavy for her and hindered more than they helped iyswim.  we had a constant flow of appointments from the minute she got home!

    you will always have people commenting on how behind they are etc but you know in yourself that they are happy and will do it eventually!

    Emma was always a bit on the smaller side aswell (still is) and i remember one day when she was about  1 1/2 and she was having a sausage roll and people were staring mouths open! said to my mum what are they are staring at and she said im used to it but to an outsider it looks like youve just given a 6 month old a sausage roll.  quite agree thats probably what it looked like lol.

    just got to try and remember that because other people havent been through the things you are experiencing with your lo they probably think he should still be doing things at a "normal" age.  I think he sounds like hes doing very well and you should be very proud of him! x

  4. 29/5/08 11:54

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    DonnaAnd aiden

    My so n Aiden was born at 28 wks due to me having PE and Hellp syndrome, he weighed just 2lb 7oz, he came home after 16wks in scbu and was on home oxygen as has chronic lung diesease and a reflux.

    Aiden is now 22 months (19 corrected) and in the last 6 wks he has started to crawl, up until then he just butt shuffled, back in January Aiden was assessed for GDD and they said he was behind so he was refered to SALT and physio, in physio they have now determined that my son has hypermobility of the joints(double jointed bascially) and that he may have to have splints on his legs as they turn out wards at the knees, he has just had a letter comethrough and on the 12 june we are off to get his piedro boots and insteps fitted so hopefully he may be able to try and walk now with out falling over or hurting himself like he normal does.

    Aiden is also back seeing his pead consultant 2nd july as they think he is serverly tounge tied as to why he wont or cant speak.

    Finally I feel as though its all happening and something seems to be getting done.

    I have kept being told he will be ok, give him time, he has all the problems but nothing has ever seemed to be getting done and now it does.

    Aiden is such a happy little boy and thelight of my life but it does hurt when others keep saying aint he doing things yet, why aint he walking yet, why aint he talking, and when I have to explain they feel so sorry for him, In my eyes he is so happy and content no one should feel sorry for him, so what if he is a little slow, give him time and YES he will probally be running rings around me and chasing the dogs and shouting no and what not at them.

    I just love him to bits the way he is, but finally feel as tough something is getting done to help with his future.

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