I am a mummy from PDIN08 and we have recently found out that one of our fellow PDIN08 mummies baby has recently been diagnosed with leukodystophy which is is either pelizaeus merzbacher or alexander disease. We are all obviously distraught and are organising a number of event's around the country to raise money for Harley, his mummy Jodie and his daddy Mike. Please pop on to PDIN08 to find out more. We are also setting up facebook event pages and if you would like to be invited to any then please feel free to add your name to the list, let us know your facebook name so we can send you and invitation and a link to the sponsorship form. We are also going to break a world record with this as Harley is one of our own and any help would be greatly appreciated.