Downs Syndrome
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- Downs Syndrome
8/10/08 13:47
8/10/08 12:14
Hello Everyone,
I'm new today and have been reading this thread. I'm 35 and have been trying for a baby for 3 years (I have an 8 year old too). I am now just over 13 weeks and have had an emotional rollercoaster this last 6 weeks. I had bleeding at 6 weeks and 10 weeks, and then at 12 weeks I was sent to hospital. My cervix had opened and the MW and Dr told me I had miscarrried, the removed what was visable. I sat in hospital and cried for several hours. 4 hours later the MW took me for a scan to check on the bleeding, I couldn't believe my eyes when I saw my baby, moving around - they were fine!! They think it may have been an undeveloped twin. I also have a bleed on 1cm in the Placenta so now have to rest.
Anyway because of all the problems I decided to have a Nuchal test yesterday, my scans look great however my blood test and age has put my risk as 1 in 158 for Down Syndrome. I don't think I can have the amnio test and put this little fighter at risk.
Having now read this thread I do think I'm making the right decison, thank you so much for your help.
J x
7/10/08 22:39
Aw, what a lovely post. I can't begin to imagine what you have been and what you are still going through but I'm so pleased to hear that you are going to try again. And I really admire your attitude to the whole thing, both the sadness of the loss of your daughter and your outlook for the future and the prospect of raising a child with Down's syndrome. I want to wish you all the very best and I hope that we hear from you again soon! Take care hun xxxxx
7/10/08 21:47
Hello, I am doing ok. I had my first session of counselling last week which at the time I wasn't sure about but have to say it's been a real help just to talk about our baby and also my other mc's. We are going to try again our risk has been put at 1-50 to 1-100 of having a Downs baby again. I know for some that would seem a high risk but to me I think if our baby has Downs then there chance of having it was 1-1 so all the statistics in the world don't mean anything in reality.
I think of my other children I have a daughter of 19 years old and another of 15 years old and during their life time they have bought us different challenges at different times, so has our son who is 3 years old. For me a baby with Downs would be no different than any other child, they are all hard work at different times and need different levels of support at different times in their lives.
I miss our little girl very much and so wish I had the chance to have watched her grow up, instead I hold her in my heart where I am so glad I got the chance to meet her and feel her even though it was only for a short time. If someone told me they could take away all the pain of the last 4 months I wouldn't let them because that would mean I would never of known her and that would be worse than having lost her is now.
26/9/08 18:19
hello railpop, hope you're ok hun. Think about you a lot, and your beautiful angel was just too good for this world. sending you best wishes xx
26/9/08 17:42
Hello Railop - how are you doing? I hope you're keeping well hun. I can't begin to imagine how you are feeling to be honest but it's good to hear from you with the latest news, albeit very sad. Take care! xxxxx
25/9/08 21:59
Hello, I went to see the consultant today to get test results back. Our baby did have Downs Syndrome. She was too poorly and just didn't survive. I would give anything for her to still be here with us.
23/9/08 15:50
BUMP for the benefit of any new ladies - although you need to go to the second page to get to the Down's Syndrome bit itself now. In fact, probably best if you start from the beginning of the thread rather than the end of it - so go straight to page 4 I think it's on or you can use the drop down box at the top of the thread to order it oldest post to newest - hope that makes sense!!!!
2/9/08 10:23
sorry for your loss ladies xx
20/8/08 11:55
Sorry to hear your news 42mum, I jsut posted a reply to railpop, and just don't know what to say. Thoughts are with you at this difficult time.
Take it easy hun xx
20/8/08 11:51
Sorry I've not posted for a few days, Ive been working away agin.
I don't know if you will pop on again and read this, but I'm so sorry Railpop for your loss, words can not begin to comfort you I know.
take care of mummy angel Finley
best wishes to you all
xxx
19/8/08 17:04
Aww hun, I'm sure no-one minds you hijacking the thread. I'm really sorry to hear your news but I'm sure it was a blessing in the end. All of my thoughts are with you and I'm sure Finley is now playing with the other little angels.... take care hun xxxx
18/8/08 22:55
Hi ladies. I seem to have hijacked this post a bit which wasn't my intention. Just to let you all know that I gave birth on Friday 15th August to Finely James who was born sleeping. He weighed in at 92 grams. He did look like he might have DS so we are having the placenta tested. If you want to read what happened then you can read it here so I don't hijack this post anymore. http://mumsam.madmums.com/2008/08/birthday/
Mum42 so sorry to hear you are loosing twins, I lost identical triplets last year also xxx
17/8/08 17:18
Aww, 42mum, sorry to hear that too hun. Thoughts with you too. xxx
16/8/08 23:23
Not too sure what to put hun, but I really hope your little one manages to fight through and all is Ok in the end. Godd luck.
16/8/08 21:48
railpop , my thoughts and prayers are with you. 11th Aug was our wedding anniversary and started bleeding that day - losing twins.
14/8/08 19:40
Railpop,
I have been reading your news and am really sorry that mother nature has dealt you a tough card. I sense you are quite strong, but I also know that once everything is over it is easy to crumble (personal experience). Look after yourself, I suppose you are starting the grieving process already in your own way.
Saying a little prayer for a big miracle.
God Bless
Jo
xx
13/8/08 23:08
Aww Railpop this must be a very difficult time for you.
I don't really know what to say but I'm thinking of you lots hun. xxxxx12/8/08 16:41
Good luck Railpop I'll be thinking of you, makes me cross when I read some of the forums where some are moaning about being pregnant and are so fed up and negative when bringing a baby into this world is such a lovely thing to be privileged to do and there are lovely people out there like yourself who have real concerns. Take care :-) xx
12/8/08 09:34
Hi Railpop, so sorry to hear your news. Hang in there hun, I know my words can not possibly help but I'm praying for a miracle for you. If you feel up to it, jump on for a chat. lots of hugs xx
Hi Joanne, glad this thread gave you some comfort, and congratulations on your pregnancy. It sounds like you've been through the mill huney. Keep us updated on your progress abd the progress of your little fighter. When are you due? xx
Railop, so good to hear from you, glad the counselling helped in some way. As have your words. You have an amazing outlook on what has happened to you and I have taken much comfort from your perspective. Stay strong xx