High risk pregnancy

High risk pregnancy
1:64 risk of downs- detailed scan vs amnio

6/9/08 22:44
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Louferguson

Well we decided today that we are not going to have the amnio done. My risk of DS is 1 in 230 where as the risk of MC is 1 in 100.

I will be having the triple blood test done just to get my AFP levels. next scan for me is at 16 weeks due to previous Spina bifida history.
5/9/08 15:39
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lucalilly

Hi,

Sorry there are new girls joning this thread......... wish no one had to go through this worry and upset!! but hopefully having so many of us in the same boat helps us all to keep our spirits up!

I am due on 2nd of Dec so think you are the first one on the list kate, really not long now! cant believe how quickly time is passing.

baloobears how are things with you, hope you got the all clear regarding your mouth.

I have just read the terribly sad news in DIA about E-Lou who sadly lost her little boy last night, She was in TTC at the same time as me and had been trying for so long to get pregnant, she had a perfect pregnancy and was 11 days overdue but her little baby was born sleeping. So sad and helps to put things in perspective for me, sometimes you think you are facing the worst when in reality there people going through other things which must be 100x harder to bear.

xxxx
5/9/08 15:25
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lauragstring

Marguerited - I hope ur so proud of yourself for being so brave and staying so positive, u really should be!!! U make me feel like Im being daft for being so negative!

Really hope the rest of your pregancy goes smoothly for you and everything works out ok. Not long to go now!

Take care.

Laura.x
5/9/08 15:05
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marguerited

Hi

Havent posted for a while. My results for Downs is 1:2 based on nuchal and blood tests, decided against amnio but because the risks was so high was ref. to guys for 2 heart scans which were fine. Have also got obstetric choleostasis which I had in previous pregnacies as well. Been to hospital today and had scan and ctg which are both fine and will have bloods and ctg weekly until the point they induce which will either be in 2 or 3 weeks {now 35 weeks)

I think the not knowing, has made this a long pregnancy, but not long to go now and my instinct tells me that this baby will be fine.
5/9/08 07:25
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lauragstring

Thanks Kate : )

It seems like they need to get something more accurate than the blood tests...cant be a good thing to be putting so many pregnant women through such stress. But you're right it definatly helps to speak 2people who r going thru the same thing.

Lou - Good luck, I hope everything goes well for you, with the amnio and the test, my fingers will be Xd for u! When is your appntmnt? Feel like Im counting down the hours til mine : (

Laura. x
4/9/08 19:46
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Kate12Rowlands

Hi to Louferguson and Laura - best of luck both. Laura let us know how the amnio goes... It does help to know that others are in the same boat! Helps you not to feel so lonely.

Sharon - Im due 20th November..... so think Im the first of us lot to get to the big day! Although Lucalilly - not sure when your due?

I know my dates are pretty spot on - although at the beginning I did think I was further on. I had the growth thing with my first pregnancy too and my lack of bump was put down to lack of amniotic fluid, hence being induced 2 weeks early. Appear to be headed in that direction again - really small bump again too! Theyve pulled my next appt forward and will decide whether to refer me after that. How did your appt go?

Kate

x
4/9/08 18:17
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Louferguson

Well looks like I am joining you too. Had my results today and I am 1 in 230...and I had a letter through this morning saying my blood sugars were high so I need a glucose test.
4/9/08 12:34
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lauragstring

Hi to everyone,

I got my results from my blood tests this morning, my midwife assured me not to worry as they would be low because Im only 21...but the hospital have said Im "slightly" high risk (1 in 220 I think) I was so so shocked as I just wasnt expecting this at all.

I arranged straight away to have an amnio on tuesday but Ive spent the whole morning terrified about the whole thing, I really do want to know either way but Im also so scared and worried about having the test.

But after reading the posts from people on here I really am feeling alot calmer about the situation, I know theres nothing I can do either way and if I want to know I just have to have the test and wait for the results and that stressing myself out is not going to help anything.

I think you are all very brave and wish everyone the best of luck with their pregnancies.

Thanks for making me feel alot better.

Laura. x
4/9/08 11:22
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Eskim079

Hi Sharon,

Thanks so much for your reply!

I have decided not to go for the amnio as the risk is that much higher and my baby comes first. I'm getting used to being in the high risk category and every day it gets a little easier - still have the odd wobble but i think i would probably do that if i was screen negative - i'm a real worrier!

Our due date is 26th Feb so just gone 15 weeks. I thought about having further non-invasive tests but was told I couldn't now and would have to wait till the 20 week scan.

I beginning to relax and enjoy my pregnancy - although i'm quite impatient and find myself wishing away the weeks ;-)

How are you and when is your due date?

I can't imagine what Sarah is going through and you are so right - puts everything into perspective!

Kim - aka Eksimo ;-)
2/9/08 22:06
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baloobears

Hi Kate

Strange how the scans /measurements can give such different dates. I am due 28th Dec I think. Never had a dating scan early on and although I am measuring big now, they won't change the date. I suppose it's only a matter of days or a week difference for me though. The sonographer said that they prefer to rely on early scan dates than later ones. Back at Kings in 4 weeks for the next scan, seeing a midwife for the first time tomorrow, so quite excited to see someone who is more hands on in terms of maternity care rather than a statistic/measurement person iykwim. What date is your baby due?

Sharon
2/9/08 16:55
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Kate12Rowlands

Well had a midwife appointment today and Im measuring (apparently) at 25 weeks pregnant rather than nearly 29 weeks - so got to go back in 2 weeks and if things havent improved Ill get referred for a scan etc...so could get another look at baby after all! Not overly worried as I had this with my first pregnancy and all was ok in the end.

Glad they are looking after you Sharon - sounds like your getting really good care - when are you due?

Kate
31/8/08 14:31
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baloobears

Hi Kate

Think that it is better not to know the sex before the actual birth, gives me something to look forward to after the labour!! My 2 children (boy and girl) are also two years apart. Can recommend it, they are good friends now and fairly close. Not sure how this one will fit in! Josephine will be 10 soon, so large gap. Plus side is I have ready made babysitters in a few years time!

Probably getting loads of checks cos of the ds odds, previous cone biospy and cancer!! At least I get to see the little one regularly! Got another scan tomorrow, they will be checking the baby's growth too.

If you fancy another private scan you should go for it! Be a good thing to see your baby again, doesn't just have to be a check that baby is ok but just to say hi!!!

Sharon
31/8/08 14:17
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baloobears

Hi Eskim079

Can understand that your worried about your odds, but it does get easier. I am now 1 in 14 which is brilliant for us and we don't worry anymore. We are having a baby that we tried so long for and desperately want and it's still kicking! Love being pregnant and beginning to excited about meeting our baby, albeit a bit of a wait yet! Our second scan did give us more hope admittedly as we were 1 in 7. Feel much more content about it all now and with time you may just let the feeling of being pregnant and being a mum take over. Suppose it's a mum thing!

Just been reading the thread about Sarah "25 weeks and waters gone", it's so sad. It puts fears about the condition of our babies into perspective.

When is your little on due?

Sharon
30/8/08 14:13
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lucalilly

Hi eskim079,

My triple test results put me at 1:64 risk for downs, i was absolutely devastated and was in turmoil about whether to have the amnio or not ,however once I had detailed scan at 18 weeks and no markers were found I did feel much more positive! As kate said about 50% of downs babies will show some markers on detailed scan so based on this my risk was halved to 1:128. When i first got my results i was adamant that I could not go through the rest of my pregnancy not knowing if my baby does or doesn't have downs but I can honestly say that about 90% of the time i dont even think about it now.

Obviously it does pop into your head now and again and you do have a bit of a wobble and maybe dont feel so positive but it does pass if you just keep reminding yourself that the odds are in your favour!!

i really hope (for all of us!!) that everything works out just fine and you can enjoy the rest of your pregnancy and get a beautiful healthy baby at the end of the rollercoaster.

xx
29/8/08 23:58
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TiggerGains

My triple test came back 1 in 220 as well. I did opt for the amnio though and fortunately have been given the all clear. I spoke to the head mw at the hosp which helped. She had phoned me with results, i took a day to mull things over and write down lots of things i was unsure of and then phoned her back and hit her with all my questions. Amongst other things i asked what my hospitals stats were for mc caused by amnio and she told me that in the 6 years she'd been at hosp they'd done roughly 80 a year and had 2 ladies miscarry so that is 2 in 460 0r 1 in 230. She also told me that my risk would increase possibly if i was overweight or i'd had bleeding in my pregnancy or suffered with previous miscarriages.

This is such a difficult decision to make and the weeks subsequent to my amnio were hellish with worry but as i am such a worrier although i wouldn't have terminated my pregnancy whatever the outcome i would hate the not knowing for 5 months. Plenty of womem do cope with this wonderfully though so it really is just down to personal choice. Hope i have helped by giving u 'the oher side of the coin'

lots of love

Ceri 21+4
29/8/08 20:12
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Kate12Rowlands

No probs - after I got the high risk result I went for a private scan (& retest which put me at 1:75 on blood alone), I was 17 weeks then. I then decided that if my NHS 20 week scan raised no problems I would not go with the amnio - had the 20 week scan and no markers shown. As I said there are no guarentees - its a risk but there are many other risks!

Let us know how your scan goes

x
29/8/08 17:02
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Eskim079

Sorry Kate, when did you have your anomoly and private scan done?

x
29/8/08 16:59
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Eskim079

Hi,

Thanks so much for your reply and yes that has really helped. I think you are right and my odds are good. I could be told i was 1 in 7000 and actually be that 1! Also, the 1 in 220 only means a might have a ds baby - still not a definite.

At the end of the day I wouldn't consider a termination and as my decision is based on peace of mind i think the right thing to do is put it to the back of my mind and enjoy the rest of my pregnancy. After all, 1 in 100 chances of miscarriage is double my chances of having a baby with ds.

Thanks again for you reply - i can't believe how useful and helpful these forums are!

All the best with you and your baby! Keep me posted.

Thanks ;-)
29/8/08 15:53
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Kate12Rowlands

Hi Emma

I know it prob wont help - but I think your odds are good! Your only very nearly in the high risk group...I turned down an amnio @ 1:65 risk. For me personally, having the anomoly (& a private scan!) did help - and my risk became less after they found no markers for ds at the scan. Apparently (& its no guarentee!) about 50% of cases are found at the scan. Ill be honest its now starting to play on my mind at about 28 weeks in - but I dont regret my decision at all as I have the attitude that I could be that 1 in 65 or I could be that 1 in 20000! (It does happen..) There are far worse things that could happen than for my child to be born with DS- although obviously I want them to be as healthy as possible.

I hope that helps in some way - its a very personal decision, but Ive now found loads of people who have been classified as high risk - I wish Id never had the test!

Kate

x
29/8/08 14:10
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Eskim079

Hi,

I have been told i have 1 in220 chance of having a DS baby and i'm really scared and worried but don't want the amnio because the chances of miscarriage are that much higher then my odds. But i'm worried i'll spend the rest of my pregnancy worrying - did you find it got easier to put to the back of your mind with time?

Also did it help having your second scan?

Many thanks