Hi hun my nephew got steven johnson syndrom when he was 3 he is 14 now.Its not a very nice illness to deal with so i understand what you are going through.We have really bad days with him now.Hope you are ok hun sending you big hugs.

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thanks for the replies ladies

Hi my daughter suffers from the other part to that erythema multiforme  and it is a bloody nightmare i wish u all the best with the sjs as i know how dangerous it can be.x

hi hun, sorry to hear about your lo and  Sj syndrome. i havent ever heard of this till i saw ur thread but just looked up on it. just wanted to send you hugs as i cant begin to imagine how hard it must be. I get stressed out with lo eczema and now i see its nothing compared to what your lo is going through. Big hugs.

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any other parents out there looking after a child with reccurrent s.j.s? would be good to talk to people in the same situation. because its so rare i feel really alone!