Thansk Sharon I'll definitely mention it and see what they say.  I hate fighting for them to believe what I say too grrr!

I'll let you know how it goes

Mandy x

Hi Mandy again, Zoe actually stopped being sick when she was 4mths old her reflux had gone silent when i weaned her, she was refluxing into her mouth but she was swallowing it back down so she was getting double the acid, which is what your lo could be doing. Good luck when you go and see the pead and hope yours isn't a patronizing one, i am working myself up for next appt already and it is in 2mths only just seen them bloody patronizing cow, its alright next time she will get a shock when i ask to read the notes smile will be on other side of face then......God i hate it. Sharon x

His next appointment is in 6 weeks.  If he is bad I will ring though as they tend to squeeze him in quicker if needs be so I'll mention it and see what is said.  He came off his meds as the sickness stopped really but that doesn't mean he isn't still refluxing though does it!  I'll follow it up and let you know

thanks for your help

Mandy x

 Hi Mandy why did they take him off  his meds for reflux, they automatically think that they grow out of it Zoe is 16mths and still as it. They think once they are 1 they automatically are reflux free, but they couldn't get away with that with Zoe as she was only put on meds at 11.5mths. Mind you went to see this useless pead who tried telling me she will grow out of it soon, i said what as a miracle happened. God some of them are useless but to me it sounds like he is still suffering from it, basically all the inhalers in the world won't help a refluxer. I hope you get him sorted out soon when is his next appt.? Sharon x

Hi Sharon

Jake is under a paed due to his prematurity.  He has an intolerance to cows milk so doesn't have any.  It is intersting what you said about reflux though as he did have reflux and had all his milk thickened but we have stopped that now although we haven't had any follow up.  It sounds like this could be a possibility as I'm pretty sure his reflux has not just disappeared!  Next time I see his paed I will ask his opinion on this.

Thanks very much

Mandy x

Hi Mandy i am glad Jakes test came back fine i bet you are glad, can i ask as Jake ever been tested for reflux or allergies, the reason why i ask is my youngest dd was like Jake constantly coughing and she even sounded like she had cf she was on a ward with cf children and sounded exact you could not tell the difference and Zoe was diagnosed as having reflux at 11mths old by a barium meal and also she as allergy to milk which is what made her cough so bad, i would look at that to me it doesn't seem the inhalers are doing a good job. Is Jake under a peadiatricain? Have they ever thought of looking at this? Sharon x

Thanks again for your support everyone.  Well the test went fine yesterday and we got the results today ... he is all clear of cystic fibrosis!  I am so so relieved

Mandy xxx

my Ds was very similar, recurent pneumonias, faltering growth, lots of hospital admissions and immune problems etc. he had a sweat test as his first test. the referal was very quick and we got our results the same day. thankfully it was negative.

he was very ill at times and even had complete bone marrow failure and things, very poorly. but he is 3 1/2 now and doing very well, so i just wanna say hang on in there!

good luck, i remember how worrying it was xxxx

Thanks so much ladies it is good to know that it is normal to be seen so quickly.  I will let you know how he gets on.

Hope your LO's are ok

Mandy xxx

Just to add to what the previous poster said. My son was referred and told he could go the next day! That is apparently quite normal and nothing to worry about.  My son was the same as yours, chest problems and failure to thrive. He was fine though. As its a painless and relativly quick test I think they tend to check to rule out more than if they think there a problem if that makes sense.

hi hunny. i have just popped into this forum to ask something about my ds but might be able to help a little. my ds was tested last year after twice being admited to hospital with breathing probs (his lung had collapsed the 2nd time and he was on oxygen for 5 days)the referals do seem to be done really really really quickly. my memory is a little hazy but from what I remember they put these electrod things on to stimulate the sweat (it doesnt hurt)then they put this circle thing on which has a dye in it, then my ds was aloowed to go run around for about 30mins then they checked it had worked took the cirlce thing of and we went home. results were meant to be quite quick but think I ended up phoning up for them.

my ds's results were negative, his pead also sent him for blood tests to check for imune deffinacy. this also came back negative we are now having to go for a ct scan on his lung.

wishing you the best of luck for his appoitment.

Hi

My son Jake (12 months but born 11 weeks prem) has always had a bad chest really but it is now taking quite alot of meds to control it ( steroid inhaler twice a day, salbutamol 6 puffs every 4 hours, attruvent 2 puffs every 6 hours and also montelukast (sp?) granules) Anyway as his weight gain is not very good at mo either the paed has said he needs to be tested for CF.

I was just wondering if anyone's LO has had this test and what it involves. Also how long did you have to wait for the results? Oh and what symptoms did your LO have?

Sorry for all questions but I thought it would be weeks and weeks till they did it like normal on NHS but they have rung up and want him in Monday! This worries me as I don't know why it is being done so quickly - has he been referred as an urgent case?

Oh it is all stressing me out at the minute. I know I don't have it as bad as alot of you but sometimes everything is too much when you feel like you are permanantly at either the hospital or the docs!!

Thanks in advance for your help/advice

Mandy xxx