Hi Elisa, what it is with the peads we are like cattle one goes out next comes in, they don't even look at the notes properly, i went last time she patronized me and then said all was ok. Got a letter through about the appt and you can even see in the letter her patronizing me and then went to see dietician who said Zoe isn't allergic to milk which i find stange as she has quite an instant reaction to it, but then she said i would like to draw your attention to this and it was her total ige results the normal range was 0.5-29.0 Zoes was 291.0 so she is allergic to something as these are the antibodies to do with allergies but don't know what but they said all blood work were fine when she was released from hospital, but that isn't fine to me the reason why she had been in hospital was i thought she had stopped breathing i now know she has been having seizures which can also be allergy related so i am well cheesed off as if they had done their job properly instead of fobbing me off they would have realised this. But i have not faith in the peads at all and she was just a SHO basically learning to be a patronizing cow. Sorry i am going off on one. Definately let me know how your son gets on, if you are not happy you can ask for a second opinion. Sharon x

Thanks Sharon- good advice -  we will try the reflux / allergy angle next.  Yes it is horrible when you know something is not right but the paeds don't seem all that concerned (as they are never here in the nightw hen things always seem to be the worse!).  They seem more concerned about testing him because he is small (2nd percentile) but as I am only 5 foot and his older brother is small this isn't a massive concern to me - have never values the percentile thing that much.

Last Paeds consultation thin the doctor was shocked when I said I wasn't happy still - infact he commented that follow ups normally only take 5 minutes and ours had taken 40 which was a record (though all we came away with was growth tests - seem to ignore the symptoms that are the problem).  He said see you again in 6 mnths.  Really feel that as a parent you have to direct the specialists and keep pushing so was looking for some next stages.

Le me know how you get on.

Thank you for taking the time to reply and hope your munchkins come through things well and soon.

Elisa

hi i am sorry to hear that your son is suffering like this and it is awful when you know something isn't right. i have 4 children and  my youngest suffers from bad reflux but before she was diagnosed at 11mths she too just sounded like your son with the major asthmatic cough mainly at night and stomach cramps she obviously couldn't tell me what hurt but i knew she wasn't right due to the very disturbed nights and climbing up and down cot, t*** and turning screaming in her sleep. it sounds to me like your son as an intolerance/allergy and he may even have undiagnosed reflux as they can suffer with it up until the age of four and rare occasions older. i am taking my second youngest to the doctor tomorrow afternoon as same as your son  i am also concerned because she too suffers with a lot of stomach cramps mainly at night and sometimes they are that bad they can go on for well over 24hrs and she looks really pale in face no temp no sickness and no diarrhea and also no constipation as i checked her stomach, but she has 2 hernias that appeared after the age of 4 so i want them checking out properly, like with scan etc just to make sure that everything is ok, she has only had them diagnosed by gp which the 2 that she went to aren't the best. but i also think she may have an intolerance to something and i want that checking out. have you been referred to a peadiatrician as i think he may need allergy/intolerance tests as something is not right. good luck, keep me updated and i will you. sharon x

Posted this in toddler section just realised it should be here.

Just wandering if anyone had any similar problems with children waking in the night with stomache pains.  My son Toby has suffered since he was little and is normally up once or twice a night and despite being two on Tuesday still requires a bottle in the night to settle him (tried abstaining but several hours of crying ensued).  He has never been great stomache wise and is sick once or twice a week from coughing and also suffered a bowel blockage seven months ago (intusuuseption).  He was misdiagnosed with lactose intollerance as he always has runny poo's.  Don't know if this story sounds familiar to anyone - hyped myself up about cystic fibrosis and we are awaiting test results in the next couple of weeks. The problem is my consultant doesn't really seem to have any ideas (I was the one to suggest CFtest) so wondered if anyone knew of a child with similar symptoms.

Also a note to mothers with children exhibiting gastro enteritis type symptoms - if these persist and you child starts passing even a small amount of red jelly like stools - get them to the hospital.  Only on my third visit did the doctor refer us to hospital after I pushed by which time Toby was very poorly with his bowel blockage and had to be rushed over to Leeds by blue lights - we were lucky but can be very dangerous and doctors are too keen to send you away.  Stick with your intuition!