Naso gastric tubes
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- Naso gastric tubes
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25/9/08 21:05
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19/9/08 08:35
My son was fes through a ng tube for a few months for milk allergy and even when he was 3 months he used to pull it out up to 4 times a day and it was awful.
His nutrition nurse said if he needed it any longer then I could have had a peg put in. It really may be worth asking. I also found different tapes were harder / easier for him to rip and if i tuck the tube behind his ear and secured it behind his head as well it would help a little. Unfortunatly the tube started effecting his throat and he was coughing continuously due to the irritation. I really would speak to your peadiatrician about putting something a little more permament in. Good luck -
18/9/08 09:59
y son has just had his ng tube removed and a tummy peg inserted instead. He is 16months and had the ng tube since 3months initially he pulled it everyday but then became every week. I sympathise with you its a total nightmare! The gastrostomy (tummy tube is far easier but they have to have a small operation to put it in.
My ds has severe reflux and doesnt eat or drink milk but we were doing that many feeds in 1 day because he only tolerates 4oz a time that it became our life feeding every2hrs. As he wsnt looking like anything was going to change for him they considered the tummy tube as a longer term measure. He is feed by a pump 12hrs a night so it leaves time to encourage food in the day. Things are looking up slightly.
You may want to mention this to your paediatrician if your child is ng feeding for a considerable time. good luck
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12/9/08 07:35
Hi i have no experience with an ng tube but i really feel for you, my dd does suffer from reflux but she was the opposite she gained weight mega and because of this she didn't get diagnosed until she was 11mths old by this point i was at the end of my tether as for sleep that had gone out of the window a long time ago, i was a robot and also i thought she actually had cf her chest was that bad. She is on the 98th centile or she was i haven't had her weighed for a while but i do know she is going down but she is still big, the peadiatricians can't believe how big she is and have reflux quite bad she as some allergies going on but don't know what yet as she is due to get tested she is now 18mths old and she is in 2-3yr old clothes and even bigger in some instances. She as had some kind of seizures and don't know what it might be related to reflux but i have read they can be related to allergies, what she hasn't had for a while is pasta and she used to have a lot of it at one point and i am now wondering if there is a link as she hasn't had a seizure for a while. I will tell the consultant this. I noticed you have got dla i am going to ring them up i applied on line and it was a while ago and have not heard anything i have a reference no so will ask about it, i thought they can only say no and with rising costs of everything it will come in good use especially when buying different foods for zoe at the minuite she is just dairy free. I had a dietician but i have wrote her off as when she was reacting to soya ie nappies but she said there was nothing to react to?????? wtf. So i don't know she said she had caught a bug because a blood test said that she isn't allergic to dairy but if i gave her normal milk and yoghurts it would completely cancel out the meds and reflux would be severe and also nappies and sickness. I have since read that blood tests on there own are unreliable and are not accurate, so i am annoyed and also that the blood tests only test for allergies and not intollerances so they don't tell you this they make you feel like you are lying to them and that it is a coincidence that each time you try soya and dairy she happens to catch a bug but when you take her off the soya and diary it is a coincidence that the bug happens to wear off!!!!!!wtf. Sorry it really annoys me, i am awaiting an appt that is supposed to be in Sept which have not recieved bugger all. Hope your lo is doing better. Sharon x
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11/9/08 20:47
My son is fed through a naso gastric tube (goes up the nose down to the stomach) due to severe gastric reflux milk and soya allergies and failure to thrive i was wondering if anyone else has a child with one of these and how they manage my son is 11 months old and keeps pulling it out its driving me mad i wish he didnt hve to have it he has had it for nearly 4 months now but we have to repass it pretty much every two days.
any advice would be appreciated thanks






My brother has had an ng tube for almost 20 years (not for reflux though.) My mum says she had to keep socks over his hands whilst he was really little then as he got older, she would make sure she taped it up as close to the nose as possible so his fingers couldnt get caught and pull it out. As he got older she just had to teach him to not pull it out.