Tourettes Syndrome
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- Tourettes Syndrome
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21/9/08 00:12
Hi sorry to hear your son has Tourette's. I'm afraid I don't have first hand experience of the condition but (I am a teacher and) I have read that the onset of puberty can make symptoms more pronounced. So I guess your consultant is trying to prepare your son. Also, when children are in primary school their friends are more innocent and carefree and tend not to notice differences in others and we as parents are also very good at protecting them and shielding them from any unkindness. I think it is probably a good thing to gently introduce your son to the reality of his condition and to prepare him for what might confront him in secondary school. It will be really important over the next few years to build up his confidence and self esteem so that if he does get negative comments from others he can either brush it off with the confidence that he is just a great person who happens to have Tourette's or can respond to them with great charm and wit and win over any potential bullies. Have a chat with him to gauge how much he knows about his condition already and how he feels about it (he probably has an idea that there is something different about him) and then sit with him and do a little research and see what you come up with (maybe look at clips of that guy who won Big Brother to see how much he was loved and admired and what a positive person he is). Your consultant might have come across a bit harsh but I think the advice was sound and at least you can have the power over what your son hears and reads about his condition before any nasty people bring him down. I hope this makes sense? and best of luck. -
19/9/08 22:13
My son who is 9 was diagnosed about a year ago and I was wondering if any of your children have it and how you cope. I was coping ok until he had his annual check up with the paed earlier and she said I need to get as much support as possible before he goes to senior school as he might get bullied (he has a statement for speech aswell)and that I need to start looking for suitable now not when he goes into year 5. I also need to make my son aware of his condition and that he is "different" to other children. He has to write a letter to the paed before end of October about what he has found out. I? found this all very strange but I guess she knows what shes on about??

