Hi clareu, im due on the 10th, im orignally from Northen Ireland,, but living in Notts (Carlton) at the minute,, yeah they say pregnancy doe make it alot worse i have got so many lumps now, but to be honest i dont care i have 2 beauitful sons and another on the way,  i hope all goes well 4 u in ur pregnancy,, and it skips ur baby xxx

hi sorry havn't been on for a while. when in december are you due im due 23/1 really looking fiorward to meeting my little baby but nervous bout finding out if he/she has nf.

my nf has got slightly worse since being pregnant but it still hardly effects me .  im form dudley where you from?

found out a month ago that my second son has it,, my third is due DID, so it is more and likely that we will have it,  My first son is effected quite bad with it,, my second son has a neurofibroma lump which is getting bigger and needs to be removed after xmas.. I find that it does effect my everyday life,, there are six signs of NF1 in total i have 5 of them, it would be nice to talk to other people about it,,

i have nf type 1 i was the first in my family to have it. i am now pregnant with my first child and my child has a 50% chance of having the disorder. nf doesnt effect my everyday life but dr's cant predict how it my effect my children but they will be able to test my baby for nf straight after birth

MY DP HAS IT HIS SON WITH PREVIOUS WIFE HAS IT AND OUR DAUGHTER HAS IT

I didnt know where else to post this,, but does anyone on here or there children suffer from NF1, if so how does it effect you/them.  I have it, have had it from birth, my eldest son has it and now it looks like my second son has it,, i am now pregnant again,, it it meant to skip generation, but in my side of the family my mum and all my siplings have it, 6 in total,  Im really interested to know if anyone else has it. xx